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0JanCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/20102204 An EU Rare Diseases Registry for Wolfram Syndrome, Alstrom Syndrome and Bardet Biedl Syndrome http://persond.cc.cec.eu.int:8082/health/projects/20101205 Sat, 01 Jan 2011 00:00:00 0JanCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/20101205 European registry and network for Intoxication type Metabolic Diseases http://persond.cc.cec.eu.int:8082/health/projects/20101201 Sat, 01 Jan 2011 00:00:00 0JanCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/20101201 The European Multiple Sclerosis Platform http://persond.cc.cec.eu.int:8082/health/projects/20113304 Sun, 01 Jan 2012 00:00:00 0JanCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/20113304 European Organisation for Rare Diseases http://persond.cc.cec.eu.int:8082/health/projects/20113212 Sun, 01 Jan 2012 00:00:00 0JanCET European Commission 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http://persond.cc.cec.eu.int:8082/health/projects/20131208 Thu, 02 Jan 2014 00:00:00 0JanCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/20131208 EUCERD Joint Action: working for rare diseases http://persond.cc.cec.eu.int:8082/health/projects/20112201 Tue, 03 Jan 2012 00:00:00 0JanCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/20112201 SGA ERNICA http://persond.cc.cec.eu.int:8082/health/projects/769076 Tue, 03 Jan 2017 00:00:00 0JanCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/769076 ERN-EYE http://persond.cc.cec.eu.int:8082/health/projects/769057 Tue, 03 Jan 2017 00:00:00 0JanCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/769057 A European Network for Rare and Complex Epilepsies http://persond.cc.cec.eu.int:8082/health/projects/769051 Tue, 03 Jan 2017 00:00:00 0JanCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/769051 ERN-RARE-LIVER: The European Reference Network in Rare Liver Disease http://persond.cc.cec.eu.int:8082/health/projects/769048 Tue, 03 Jan 2017 00:00:00 0JanCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/769048 EUROPEAN REFERENCE NETWORK ON HEREDITARY METABOLIC DISEASES http://persond.cc.cec.eu.int:8082/health/projects/769046 Tue, 03 Jan 2017 00:00:00 0JanCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/769046 ERN-ITHACA: A European Reference Network for Rare Intellectual Disability, TeleHealth and Syndromic Malformations http://persond.cc.cec.eu.int:8082/health/projects/769045 Tue, 03 Jan 2017 00:00:00 0JanCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/769045 EUROPEAN REFERENCE NETWORK ON BONE RARE DISEASES http://persond.cc.cec.eu.int:8082/health/projects/769040 Tue, 03 Jan 2017 00:00:00 0JanCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/769040 European Reference Network (ERN) on Rare Multisystemic Vascular 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http://persond.cc.cec.eu.int:8082/health/projects/2003220 Rare Diseases Portal http://persond.cc.cec.eu.int:8082/health/projects/2006119 Thu, 04 Jan 2007 00:00:00 0JanCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/2006119 Establishment of an European Network of Rare Bleeding Disorders http://persond.cc.cec.eu.int:8082/health/projects/2006118 Thu, 04 Jan 2007 00:00:00 0JanCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/2006118 European Porphyria Network: providing better healthcare for patients and their families http://persond.cc.cec.eu.int:8082/health/projects/2006107 Thu, 04 Jan 2007 00:00:00 0JanCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/2006107 Development of Orphanet - The Rare Diseases Portal http://persond.cc.cec.eu.int:8082/health/projects/20091215 Mon, 04 Jan 2010 00:00:00 0JanCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/20091215 Development of the European portal of rare diseases and orphan drugs http://persond.cc.cec.eu.int:8082/health/projects/20102206 Tue, 04 Jan 2011 00:00:00 0JanCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/20102206 Inherited NeuRoMetabolic Diseases INFORMATION NETWORK http://persond.cc.cec.eu.int:8082/health/projects/20121212 Fri, 04 Jan 2013 00:00:00 0JanCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/20121212 An EU rare diseases registry for Niemann-Pick Disease type A, B and C. http://persond.cc.cec.eu.int:8082/health/projects/20121201 Fri, 04 Jan 2013 00:00:00 0JanCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/20121201 European Centres of Reference Network for Cystic Fibrosis http://persond.cc.cec.eu.int:8082/health/projects/2006105 Fri, 05 Jan 2007 00:00:00 0JanCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/2006105 Information network on rare cancers http://persond.cc.cec.eu.int:8082/health/projects/20111201 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Commission http://persond.cc.cec.eu.int:8082/health/projects/20081206 European Haemophilia Network http://persond.cc.cec.eu.int:8082/health/projects/20111207 Fri, 06 Jan 2012 00:00:00 0JanCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/20111207 Promoting Implementation of Recommendations on Policy, Information and Data for Rare Diseases http://persond.cc.cec.eu.int:8082/health/projects/677024 Tue, 06 Jan 2015 00:00:00 0JanCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/677024 The PRES European Network of Registries for Autoinflammatoy Diseases in childhood. http://persond.cc.cec.eu.int:8082/health/projects/2007332 Mon, 07 Jan 2008 00:00:00 0JanCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/2007332 European Prevention Initiative for Dermatological Malignancies http://persond.cc.cec.eu.int:8082/health/projects/2007101 Mon, 07 Jan 2008 00:00:00 0JanCET European Commission 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http://persond.cc.cec.eu.int:8082/health/projects/20121206 European Haemophilia Safety Surveillance System http://persond.cc.cec.eu.int:8082/health/projects/2007107 Thu, 10 Jan 2008 00:00:00 0JanCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/2007107 Dissemination and Implementation of the Standards of Care for Duchenne Muscular Dystrophy in Europe (including Eastern countries) http://persond.cc.cec.eu.int:8082/health/projects/20091205 Sat, 10 Jan 2009 00:00:00 0JanCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/20091205 Joint Action on Rare Cancers http://persond.cc.cec.eu.int:8082/health/projects/724161 Sun, 10 Jan 2016 00:00:00 0JanCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/724161 Policy Action and Information for Rare Diseases in Europe http://persond.cc.cec.eu.int:8082/health/projects/2004117 Sun, 11 Jan 2004 00:00:00 0JanCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/2004117 European Reference Network for GEnetic TUmour RIsk Syndromes - GENTURIS http://persond.cc.cec.eu.int:8082/health/projects/739547 Fri, 03 Feb 2017 00:00:00 0FebCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/739547 European Reference Network on BONe rare Diseases http://persond.cc.cec.eu.int:8082/health/projects/739539 Fri, 03 Feb 2017 00:00:00 0FebCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/739539 European Reference Network on Rare Endocrine Conditions http://persond.cc.cec.eu.int:8082/health/projects/739527 Fri, 03 Mar 2017 00:00:00 0MarCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/739527 Rare Connective Tissue and Musculoskeletal Diseases Network http://persond.cc.cec.eu.int:8082/health/projects/739531 Sun, 05 Mar 2017 00:00:00 0MarCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/739531 A European Reference Network for 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http://persond.cc.cec.eu.int:8082/health/projects/739544 Sun, 03 Sep 2017 00:00:00 0SepCEST European Commission http://persond.cc.cec.eu.int:8082/health/projects/739544 European Reference Network on Paediatric Cancer http://persond.cc.cec.eu.int:8082/health/projects/739538 Tue, 03 Oct 2017 00:00:00 0OctCEST European Commission http://persond.cc.cec.eu.int:8082/health/projects/739538 2nd Pan-European Conference on Haemoglobinopathies http://persond.cc.cec.eu.int:8082/health/projects/20094201 Thu, 01 Jan 1970 01:00:00 1JanCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/20094201 4th Eastern European Conference for Rare Diseases and Orphan Drugs "TOGETHER FOR INTEGRATIVE APPROACH TO RARE DISEASES" http://persond.cc.cec.eu.int:8082/health/projects/20084253 Thu, 01 Jan 1970 01:00:00 1JanCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/20084253 European network and registry for homocysinurias and methylation defects http://persond.cc.cec.eu.int:8082/health/projects/20121202 Thu, 01 Jan 1970 01:00:00 1JanCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/20121202 Building Consensus and Synergies for the EU Registration of Rare Disease Patients http://persond.cc.cec.eu.int:8082/health/projects/20101202 Thu, 01 Jan 1970 01:00:00 1JanCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/20101202 Proposal for Operating Grant Framework Partnership Agreement 2015-2017 for the European Organisation for Rare Diseases (EURORDIS) http://persond.cc.cec.eu.int:8082/health/projects/662584 Thu, 01 Jan 1970 01:00:00 1JanCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/662584 National policies and plans for rare diseases in Europe : shared experiences and recommandations http://persond.cc.cec.eu.int:8082/health/projects/20084251 Thu, 01 Jan 1970 01:00:00 1JanCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/20084251 Social 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1JanCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/2007122 European Reference Network on Rare Adult Cancers http://persond.cc.cec.eu.int:8082/health/projects/739521 Thu, 01 Jan 1970 01:00:00 1JanCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/739521 European Autism Action 2020: Working Conference on a European Strategic Plan for Autism, Dublin, 2010 European Autism Action 2 http://persond.cc.cec.eu.int:8082/health/projects/20094302 Thu, 01 Jan 1970 01:00:00 1JanCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/20094302 European Network of Surveillance on risk factors for Autism and Cerebral Palsy http://persond.cc.cec.eu.int:8082/health/projects/2006127 Thu, 01 Jan 1970 01:00:00 1JanCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/2006127