Major and chronic diseases / Projects

First Programme of Community action in the field of public health (2003-2008)
European Information System to Monitor Short and Long-Term Morbidity to Improve Quality of Care and Patient-Safety for Very-Low-Birth-Weight Infants [EURONEOSTAT]
We aim to develop an Information System to assess quality of health care delivered to very prematurely infants (birth weight less than 1.500 g and/or less than 32 wks) at different units, regions and ...
We aim to develop an Information System to assess quality of health care delivered to very prematurely infants (birth weight less than 1.500 g and/or less than 32 wks) at different units, regions and EU countries. This could contribute to improve the health status of those high-risk infants, and detect any outcome inequalities that might exist, by:
1. create and validate a set of neonatal indicators to evaluate the specific rates of neonatal and post-neonatal mobility;
2. test the hypothesis that gestational age is a better indication of short- and long-term risks than birth weight;
3. use specific health indicators given by participating units for benchmarking to identify areas with opportunities to improve quality-of-care, and monitor their success, in selected areas, we will perform inter-regional comparisons to identify outcomes affected by variability of clinical practices and health delivery systems;
4. develop and validate a minimal follow-up dataset to assess the quality of life at 24 months, and an expanded questionnaire to be tested at selected institutions or regions;
5. assess the predictive value of perinatal indicators for the health status at 24 months; and develop software and tools to collect, transfer, validate, standardise and compare the perinatal and follow-up data collected, using up-to-date ICT.
Start date: 01/01/2006 - End date: 01/01/2009
Call: Health Information (Hi 2005)
Topic: Major and chronic diseases
First Programme of Community action in the field of public health (2003-2008)
European Global Oral Health Indicators Development Phase II [EGOHID II]
General objective is to support European Member States in their efforts to reduce the public heath impact of morbidity and disability related to oral diseases. As part of the Health Information and Kn...
General objective is to support European Member States in their efforts to reduce the public heath impact of morbidity and disability related to oral diseases. As part of the Health Information and Knowledge System, the oral health project objective is to provide quality, relevant and timely data, information and knowledge in order to support public health decision-making at European, national, sub-national and local level. Choosing the most relevant set of data indicators, an up-to-date information technology, methods and relevant statistical analysis, represent some of the essential steps to assure a functional Health Information System. The objectives of the programme are in line with those of the public health Community action programme (2003-2008): 1. To strengthen the health system performance through a better system organization. 2. To improve the quality of the health information while facilitating Member States cooperation 3. To encourage the development of relevant and action-oriented community health policies with priority focus at reducing health inequalities.
Start date: 01/01/2006 - End date: 01/05/2008
Call: Health Information (Hi 2005)
Topic: Major and chronic diseases
First Programme of Community action in the field of public health (2003-2008)
EUropean Core Indicators in Diabetes Mellitus [EUCID]
The European Core Indicators for Diabetes mellitus (EUCID) project sets up a stable organization to collect and analyse data on health status and care delivery for diabetes mellitus in the EU countrie...
The European Core Indicators for Diabetes mellitus (EUCID) project sets up a stable organization to collect and analyse data on health status and care delivery for diabetes mellitus in the EU countries and the future member states in order to promote the planning for a good diabetes health status and diabetes care organization in the different countries. The first objective is to show the feasibility of the data collection. The second objective is to create a stable platform for the data collection. The third objective is to create a reporting platform for the indicators using the existing structure of the EC. These objectives are to be reported in a paper with the agreement of the different participating partners after the start up meeting and a final report showing the collected indicators, with a proposal for collection of data in the future, using a stable paper and electronic platform for reporting.
Start date: 01/01/2006 - End date: 01/01/2008
Call: Health Information (Hi 2005)
Topic: Major and chronic diseases
First Programme of Community action in the field of public health (2003-2008)
European Collaboration on Dementia [EuroCoDe]
The aim of the project is to develop a European network of all the players active in the area of dementia to jointly develop consensual indicators and to develop an ongoing dialogue between these acto...
The aim of the project is to develop a European network of all the players active in the area of dementia to jointly develop consensual indicators and to develop an ongoing dialogue between these actors to identify ways of developing synergies and a closer collaboration on a European level. For the definition of these indicators, the network to bring together a number of established pan-European organisations, European projects and informal collaborations, such as the Cochrane Dementia and Cognitive Improvement Group, the European Alzheimer`s Disease Consortium, the European Association of Geriatric Psychiatry, the Dementia Panel of the European Federation of Neurological Societies, the INTERDEM (Early detection and timely intervention in dementia) group, the International Association of Gerontology (European Region) and the North Sea Dementia Research Group. Recognising the global dimension of dementia and the need to extend its collaborative effort, Alzheimer Europe would furthermore like to actively involve Alzheimer`s disease International. This network would respond to the objectives of the Community Action Programme concerning the creation of a sustainable health monitoring and information system for Alzheimer`s disease and other forms of dementia. Particular attention would be paid to the development of information and the definition of indicators relating to the prevalence, diagnosis, treatment and management of Alzheimer`s disease and related disorders, as well as the risk factors and potential risk reduction or prevention strategies for this group of diseases. Finally, the socio-economic impact of dementia would be studied, as well as the social support provided by Member States to people with dementia and their carers.
Start date: 01/01/2006 - End date: 01/01/2009
Call: Health Information (Hi 2005)
Topic: Major and chronic diseases
First Programme of Community action in the field of public health (2003-2008)
EU Primary Immunodeficiency Consensus Conference [-]
The general objective of this project was the organisation of the EU Consensus Conference on the subject of Primary Immunodeficiencies (PIDs) with the participation of 100 experts and delegates in cli...
The general objective of this project was the organisation of the EU Consensus Conference on the subject of Primary Immunodeficiencies (PIDs) with the participation of 100 experts and delegates in clinical immunology, PID care, public health, genetics, EU/national ministries of health and agencies, academic centres, public health laboratories, professional organisations and patient groups, in order to identify and develop public health strategies that can be applied to PIDs. The strategic objectives - use the meeting as the basis for wider recognition of PID as a public health issue in the EU, and to be the forum whereby European experts can outline a framework for a public health approach to PIDs. Results of this work are available for national policy makers, public health experts, researchers and the general public. This framework has the potential to become a public health model to other single-gene disorders.
Start date: 01/01/2006 - End date: 01/01/2007
Call: Health Information (Hi 2005)
Topic: Major and chronic diseases