Patients rights / Projects

Second Programme of Community action in the Field of Health 2008-2013
SANL_FY2014 [SANL_FY2014]
Stichting Aids Fonds - STOP AIDS NOW! - Soa Aids Nederland (SANL) is host organisation of the network AIDS Action Europe (AAE). SANL is a national organisation that aims to prevent sexually transmitte...
Stichting Aids Fonds - STOP AIDS NOW! - Soa Aids Nederland (SANL) is host organisation of the network AIDS Action Europe (AAE). SANL is a national organisation that aims to prevent sexually transmitted infections, including HIV, and improve the quality of STI control in the Netherlands. The operating grant is requested for the core work programme of AAE.
AAE’s mission is to bring together civil society to work towards a more effective response to the HIV epidemic in Europe and Central Asia. We strive for the best standards of human rights protection and universal access to prevention, treatment, care and support. We aim to reduce health inequalities focusing on most at risk populations and the epidemic in Central and Eastern Europe and Central Asia.
We envision a world where people living with, affected by and vulnerable to HIV/AIDS enjoy life free from stigma, discrimination and persecution, and have access to prevention, treatment, care and support equally across Europe and Central Asia.
AAE`s policy, advocacy and linking and learning work is shaped by a set of core values: be accountable and hold others accountable; be transparent; be inclusive; put in practice the GIPA principle (greater involvement of people living with HIV); work from a human rights based approach; facilitate a networking and partnership culture; be cost-effective; and make a difference.
Our mission is communicated through our website, social media, in our promotion leaflet, work plans and annual reports, among others.
The AAE Steering Committee recently started a strategic discussion which resulted in an adapted and more focused mission and strategic objectives. Throughout 2013 the SC will work on an adapted strategic plan for the coming period.

Start date: 01/01/2014 - End date: 01/01/2015

Call: Promote Health (Hp-2013)
Topic: Patients rights
First Programme of Community action in the field of public health (2003-2008)
AVERROES Network - Improving access to health care for asylum seekers and undocumented migrants in the EU [AVERROES]
The project contributes to enhancing the European Union population’s health, by improving asylum seekers’ and undocumented migrants’ access to health care. Médecins du Monde (MdM) aims at docum...
The project contributes to enhancing the European Union population’s health, by improving asylum seekers’ and undocumented migrants’ access to health care. Médecins du Monde (MdM) aims at documenting asylum seekers and undocumented migrants’ access to health care in the EU. MdM also seeks to promote these populations’ right to access health care on equal terms with nationals, and a right to protection against deportation for seriously ill foreigners.
Start date: 01/04/2008 - End date: 01/04/2011

Call: Health Determinants (Hd 2007)
Topic: Patients rights
Second Programme of Community action in the Field of Health 2008-2013
ALzheimer COoperative Valuation in Europe [ALCOVE]
The JA will be contribute to public health programmes in Europe and develop Alzheimers disease (AD) and dementia prevention and care models in different European countries. The aim is to contribute to...
The JA will be contribute to public health programmes in Europe and develop Alzheimers disease (AD) and dementia prevention and care models in different European countries. The aim is to contribute to improvements in health by supporting and facilitating quality and efficiency of public health and healthcare policies and interventions. Synergy and avoidance of duplication with other health and research programs will be ensured.
The aim is to build a sustainable European platform. The objectives of ALCOVE are to accomplish the following during the 2 year project duration:
1. Establish a European statement on Alzheimer`s disease: Propose a synthesis regarding AD information and practices in Europe which could be the basis for further implementation at the European level
2. Ability of the JA to support the implementation of good practices in the field of risk prevention with measured results for patients: a focus on the overuse of psychotropics.
Start date: 01/04/2011 - End date: 01/04/2013

Call: Promote Health (Hp-2010)
Topic: Patients rights
First Programme of Community action in the field of public health (2003-2008)
Responsibility & Partnership – Together against HIV / AIDS [TAHA]
The project aims to promote cooperation between governmental and nongovernmental organisations in combating HIV/AIDS in the European Union and neighbouring countries.
Start date: 01/10/2006 - End date: 01/01/2008

Call: Health Determinants (Hd 2006)
Topic: Patients rights
Second Programme of Community action in the Field of Health 2008-2013
6th Global Patients Congress [IAPO Congress]
The Congress will contribute to the IAPO Strategic Objectives set out in the Strategic Plan 2010-2014 (www.patientsorganizations.org/development) in the following ways:

Strategic Objective 1: Engagem...
The Congress will contribute to the IAPO Strategic Objectives set out in the Strategic Plan 2010-2014 (www.patientsorganizations.org/development) in the following ways:

Strategic Objective 1: Engagement
Participants understand the value of patient engagement
A wide range of healthcare stakeholders understand the role of patients in healthcare research
A wide range of healthcare stakeholders understand the role of patients in all types and phases of healthcare decision-making
IAPO highlights its policy positions according to policy strategy

Strategic Objective 2: Voice
IAPO Members highlight their priority issues and activities to a wide audience
Patient advocates feel supported by IAPO and more able to engage in international, regional and national decision-making and research processes
Key stakeholders consider that IAPO represents the global patients` voice

Strategic Objective 3: Member-led
Provide opportunities to involve IAPO Members in IAPO’s work
Communicate to members the benefits of the opportunities available to them
Communicate developments in IAPO’s work to members
Demonstrate the relevance and role of partnerships between patients’ organizations
Demonstrate the relevance, value and role of networks between patients` organizations
Support exchange, learning and joint working between members towards patient-centred healthcare
Patients` organizations feel more able to articulate and advocate for patient-centred healthcare

Strategic Objective 4: Sustainability
Encourage patients’ organizations to join IAPO
Communicate IAPO’s value to members
Communicate what IAPO is doing on behalf of members and what impact it is having on them
Promote longer term commitments from donors
Encourage partnerships and support between organizations

Learning Outcomes
a) Develop the knowledge and understanding amongst patients` organizations on current healthcare issues such as counterfeit medicines, non-communicable diseases and health technology assessment amongst others
b) Develop the capacity of patients` organizations to promote patient-centred healthcare and influence the decisions that affect them at the local, national, regional and international level

Networking Outcomes
c) Develop new and strengthen existing patients’ organizations networks so that they can have a strong unified voice
d) Provide ongoing support and opportunities through IAPO to contribute to the global patients voice in key meetings and policy consultations, and through ongoing capacity support and resources
e) Develop networks and initiate working relationships between patients` organizations and other healthcare stakeholders (policy makers, health professionals, industry representatives and academics/researchers)
f) Raise the profile of IAPO with healthcare stakeholders


Start date: 01/12/2013 - End date: 01/06/2014

Call: Promote Health (Hp-2013)
Topic: Patients rights