Patients rights / Projects

Second Programme of Community action in the Field of Health 2008-2013
De Stichting Aids - Soa Aids Netherlands [SANL_FY2011]
Soa Aids Nederland (SANL) is host organisation of the network AIDS Action Europe (AAE). AAE’s mission: unite civil society to work towards a more effective response to the HIV epidemic in Europe and...
Soa Aids Nederland (SANL) is host organisation of the network AIDS Action Europe (AAE). AAE’s mission: unite civil society to work towards a more effective response to the HIV epidemic in Europe and Central Asia. We strive for better protection of human rights and universal access to prevention, treatment, care and support and work towards a reduction of health inequalities focussing on most at risk populations in Central and Eastern Europe and Central Asia.
Start date: 01/01/2011 - End date: 01/01/2012

Call: Promote Health (Hp-2010)
Topic: Patients rights
Second Programme of Community action in the Field of Health 2008-2013
Stichting Health Action International [HAI_FY2011]
Health Action International (HAI) Europe is a non-profit, independent, European network of consumer groups, public interest NGOs, healthcare providers, academics and individuals.HAI Europe’s mission...
Health Action International (HAI) Europe is a non-profit, independent, European network of consumer groups, public interest NGOs, healthcare providers, academics and individuals.HAI Europe’s mission and goals follow the overarching global work programme set every 5 years.HAI Europe devises plans and strategies for medicines’ policy issues in Europe and acts as a regional centre.

HAI Europe’s mission is:
-to increase access to essential medicines = medicines for priority health needs are available, accessible and affordable for all;
-to improve the rational use of medicines = citizens receive medication appropriate to their clinical needs, in tailored doses, for an adequate period of time,at the lowest cost to them and their community.
HAI works to achieve these goals through research excellence and evidence-based advocacy.
Vision: Poverty and social injustice represent the greatest barriers to sustainable health and development. HAI works for just and equitable societies where people can participate in decisions affecting their health and well being, including the allocation of resources.
Start date: 01/01/2011 - End date: 01/01/2012

Call: Promote Health (Hp-2010)
Topic: Patients rights
Second Programme of Community action in the Field of Health 2008-2013
European Organisation for Rare Diseases [EURORDIS_FY2011]
EURORDIS is a patient-driven alliance of Patient Organisations(POs) and individuals active in the field of rare diseases (RD). It represents the voice of an estimated 29 million citizens in the EU.

E...
EURORDIS is a patient-driven alliance of Patient Organisations(POs) and individuals active in the field of rare diseases (RD). It represents the voice of an estimated 29 million citizens in the EU.

EURORDIS mission is to build a strong pan-European community of Patient Organisations and people living with RD, to be their voice at the European level and to fight against the impact of RD on their lives.

To this end, EURORDIS undertakes activities on behalf of its members:

• Empowering RD patient groups
• Advocating RD as a public health priority
• Raising public awareness on RD
• Improving access to information, treatment, care and support for people living with RD
• Improving quality of life
• Encouraging good practices in relation to these issues
• Promoting scientific and clinical research on RD
• Developing treatments and drugs for people with RD

EURORDIS plays a pivotal role in the implementation of the EU strategy on RD (EC Communication, Dec.2008 and Council Recommendations, June 2009), in the EU Committee of Experts on RD and in the elaboration of National Plans or Strategies on RD.
Start date: 01/01/2011 - End date: 01/01/2012

Call: Promote Health (Hp-2010)
Topic: Patients rights
Second Programme of Community action in the Field of Health 2008-2013
Chain of Trust–Understanding patients and health professionals’ perspective on Telehealth to build confidence and acceptance [Chain of Trust]
The paramount objective of the "Chain of Trust" project is to advance the empowerment of patients, health professionals and national health authorities across the EU in their understanding and effecti...
The paramount objective of the "Chain of Trust" project is to advance the empowerment of patients, health professionals and national health authorities across the EU in their understanding and effective use of telehealth services in an effort to actively contribute to the vision of high quality, patient-centred, equitable healthcare for all EU patients.
Through a series of focused and well defined actions the project will strengthen significantly the levels of awareness and trust for all key stakeholders.

To this end two specific objectives have been identified:

1. Knowledge gathering. To improve available knowledge of the specific views – needs, perceptions on the added value and concerns - among patients and health professionals with regard to telehealth services;

2. Rasing awareness and understanding. To increase awareness and understanding of users` perspective on telehealth amongst patients` and health professionals` organisations and health authorities at European and Member State level.
Start date: 01/01/2011 - End date: 01/01/2013

Call: Improve Citizen''S Health Security (Hs-2009)
Topic: Patients rights
Second Programme of Community action in the Field of Health 2008-2013
European Patients' Forum [EPF_FY2012]
-Vision:
Patient-centred, high quality, equitable healthcare for all patients throughout the EU.
-Mission:
To be the collective patients` voice at EU level, manifesting the solidarity, power and unity...
-Vision:
Patient-centred, high quality, equitable healthcare for all patients throughout the EU.
-Mission:
To be the collective patients` voice at EU level, manifesting the solidarity, power and unity of the EU patients` movement,and provide a strong and united patients` voice to put patients at the centre of EU health policy and programmes.
-Core values/guiding principles as agreed in the Strategic Plan:
- We are patient-centred and right-based
- We combat discrimination on the grounds of illness and address health inequalities from the perspective of patients
- We advocate a holistic approach to healthcare issues that includes the social, economic,cultural, environmental and mental health agenda for patients, carers and families
- We foster the empowerment of patients, carers and their families by breaking down attitudinal barriers and prejudice regarding patients` place in society as equal citizens
- We consult and build consensus within our membership to address the EU policy issues that have an impact on the patient community
- We are an independent organisation, transparent in all our operations-financial, policy,communications
- We are an open and inclusive organisation and strive to ensure that our work also reflects the opinion of potentially marginalised and under-represented patients,carers and families
- We have a strong commitment to gender equality
Additional values informing our work are:
- We foster the meaningful involvement of patients through empowerment by breaking down attitudinal barriers regarding the place of patients in healthcare and society as equal citizens
- We encourage effective,inclusive and sustainable patient organisations throughout the EU
- We are committed to giving a voice to underrepresented patients, including young patients and reaching out to all ethnic and cultural patient groups
- With regard to ethical issues,EPF respects recognised European and International instruments protecting human rights.
Our vision and core values inform EPF`s policy and programme work, external communications and collaboration.
Start date: 01/01/2012 - End date: 01/01/2013

Call: Generate And Disseminate Health Information And Knowledge (Hi-2010)
Topic: Patients rights