Lung / Projects

3rd Health Programme (2014-2020)
EUROPEAN REFERENCE NETWORK ON RARE RESPIRATORY DISEASES [ERN-LUNG]
ERN-LUNG is a network of European patients and healthcare providers dedicated to ensuring and promoting excellence in care and research to the benefit of patients affected by rare respiratory diseases...
ERN-LUNG is a network of European patients and healthcare providers dedicated to ensuring and promoting excellence in care and research to the benefit of patients affected by rare respiratory diseases. ERN-LUNG’s vision is to be a European knowledge hub for rare respiratory diseases and to decrease morbidity and mortality from rare respiratory diseases in people of all ages. ERN-LUNG is a European Reference Network (ERN), a non-profit, international, professional, patient centred network.
ERN-LUNG is focused on rare respiratory diseases and is made up of nine core networks representing the diversity of diseases and conditions affecting the lungs. The current core networks (sub-thematic areas) are interstitial lung diseases, cystic fibrosis, pulmonary hypertension, primary ciliary dyskinesia, non-CF bronchiectasis, alpha1-antitrypsin deficiency,
mesothelioma, chronic lung allograft dysfunction, and other rare lung diseases (e.g. respiratory malformations, Ondine syndrome). In addition to the sub-thematic groups, ERN-LUNG is also organized in functional committees tackling horizontal topics, affecting all of the current and future core networks of ERN-LUNG. These functional committees are Research and Clinical Trials, Ethical Issues, Registries and Biobanks, Patient Recorded Outcomes and Quality of Life, Quality Management, Guidelines and Best Practice of Care, Communication and Outreach, Cross Border Care, and Professional Training and Continued Medical Education.
In building up on and learning from mature networks of recognized international excellence, ERN-LUNG will add value for patients, healthcare providers, and professionals through dissemination of knowledge, enhancement of general expertise by learning from the best centres in rare respiratory diseases in Europe, and improvement of standards of care, quality of life and prognosis for the whole spectrum of rare pulmonary diseases.
Start date: 01/03/2017 - End date: 28/02/2018

Call: EUROPEAN REFERENCE NETWORKS SPECIFIC GRANT AGREEMENTS COVERING YEAR 2017
Topic: Lung
3rd Health Programme (2014-2020)
Empowering Hospital [Emp-H]
This multicentre project aims to foster health promotion interventions and environments suitable for patients, their families, and health professionals. The strategy is based on the Health Promoting H...
This multicentre project aims to foster health promotion interventions and environments suitable for patients, their families, and health professionals. The strategy is based on the Health Promoting Hospitals (HPH) framework with a strong emphasis on evidence based prevention.
The ultimate goal of this project is achievement of measurable improvements in population health through comprehensive promotion of healthy behaviours in diverse and complementary categories of individuals.
The project would focus on vulnerable patients presenting with acute manifestation of an underlying chronic condition, and on those they have stronger bonds with. Both patients and their families are assumed—in line with theory and evidence—to feel more susceptible to illness and more open to realize

Start date: 01/05/2015 - End date: 30/04/2018

Call: Call for Proposals for Projects 2014
Topic: Lung
3rd Health Programme (2014-2020)
Participation To Healthy Workplaces And inclusive Strategies in the Work Sector [PATHWAYS]
Individuals with chronic diseases and mental disorders often experience work-related problems, such as unemployment, absenteeism, reduced productivity and stigmatization in the workplace, leading to n...
Individuals with chronic diseases and mental disorders often experience work-related problems, such as unemployment, absenteeism, reduced productivity and stigmatization in the workplace, leading to negative consequences at individual, national and European level. The rising prevalence of chronic diseases and mental disorders as well as the current economic crisis make this issue even more problematic, requiring action in terms of innovative strategies to improve the participation of these persons in the labor market. Unfortunately, this is hindered by a lack of knowledge of which strategies are available in the different European countries and their effectiveness, and a lack of clarity regarding the employment-related needs of these individuals, leading to gaps between what is offered and what is needed. Therefore, PATHWAYS aims a) to identify integration and re-integration strategies that are available in Europe and beyond, b) to determine their effectiveness, c) to assess the specific employment-related needs of persons with chronic diseases and mental disorders and d) to develop guidelines supporting the implementation of effective professional integration and reintegration strategies. Involvement in PATHWAYS of 12 partners with vast expertise in the area of chronic and mental conditions and employment from 10 different European countries allows to compare strategies between different European regions, taking into account cultural, social, and political differences. Stakeholder consultations, including advocacy organizations, employers, policy makers, international organizations, and European Union delegates, will provide useful insights as to the development and implementation of policy recommendations to improve their integration or reintegration into the workplace. In this way, PATHWAYS will provide the first steps to work towards a more inclusive labor market in which persons with chronic diseases and mental disorders can meaningfully participate.
Start date: 01/05/2015 - End date: 30/04/2018

Call: Call for Proposals for Projects 2014
Topic: Lung
3rd Health Programme (2014-2020)
Organization of two presidency conferences under the auspices of the Slovakian Presidency to Council of EU [SK PRES]
The aim of this proposal is to submit proposal for two presidency conferences organized under the auspices of the Slovakian Presidency to the Council of the European Union. The Presidency conferences ...
The aim of this proposal is to submit proposal for two presidency conferences organized under the auspices of the Slovakian Presidency to the Council of the European Union. The Presidency conferences are to be partly financed under the work programme 2016. There are two conferences to be followed in this proposal: (1) a conference on ‘Prevention of chronic non-communicable diseases and healthy lifestyles’ and (2) a conference on ‘Alzheimer’s disease - the epidemic of the third millennium. Are we ready to face it’?

(1) ‘Prevention of chronic non-communicable diseases and healthy lifestyles’
The conference will focus on the impact of the reduction and elimination of risk factors causing non-communicable disease and support the EU aims in the area of chronic diseases mitigation.
The objective is to point to the issue of non-communicable chronic diseases and healthy lifestyle and to nourish the discussion to foster the topic on the European level.

(2) ‘Alzheimer’s disease - the epidemic of the third millennium. Are we ready to face it?
The aim is to promote research, prevention, early diagnosis and treatment of dementia. Our aim also is to strengthen the coordination within Member states of relevant policies in the field of dementia and discuss development of the future steps in the area of dementia.

Start date: 04/08/2016 - End date: 03/08/2017

Call: Slovakian EU Presidency Conference
Topic: Lung
3rd Health Programme (2014-2020)
ERN TRANSPLANTATION IN CHILDREN (SOT&HSTC) [ERN TRANSPLANT-CHILD]
ERNs should link existing highly specialised healthcare providers, as expertise in rare or lowprevalence
complex disease or conditions is scarce and dispersed. ERNs will facilitate timely access
to ...
ERNs should link existing highly specialised healthcare providers, as expertise in rare or lowprevalence
complex disease or conditions is scarce and dispersed. ERNs will facilitate timely access
to care by centralising knowledge and experience, research and training for these diseases and
conditions. We propose TRANSplantCHILD based on the understanding of transplantation in children as
a low-prevalence complex medical condition that requires highly specialised expertise and
resources.
Paediatric transplantation (PT), both solid organ (SOT) and hematopoietic stem cell transplantation
(HSCT), is the only curative procedure for several rare diseases causing the highest mortality rate in
European children. Paediatric surgical procedures allow transplantation of virtually all organs, but a
clear gap yet exists, as proper post-transplant care constitutes a challenge that demands the
multidisciplinary coordinated efforts of organ-focused specialists, especially when more than one
organ is transplanted, with other specialised clinical and laboratory resources that support the
transplantation procedure in common processes for SOT and HSCT as immunosuppression,
immune reconstitution, rejection, tolerance, risk of infection, second malignancies, etc.
In addition, other areas of non-medical supportive care need to be in place for children and their
families, due to severe psychological and socio-economic issues that extend to adulthood. Costeffective
measures will clearly be beneficial in PT when compared to those obtained in adults as life
expectancy after transplantation is much longer.
Transplanted individuals shift their primary disease to a chronic condition of immunosuppresion to
avoid rejection, requiring proper monitoring and care of post-transplant complications. This state is
even more life-conditioning for children, demanding even more expertise in reference centres
connecting multidisciplinary medical expertise, transfer of knowledge and innovative medicine as
children
Start date: 15/03/2017 - End date: 14/03/2022

Call: European Reference Networks
Topic: Lung