Projects / European Commission Data Programme DataBase http://ec.europa.eu/chafea/ Projects / European Commission Data Programme DataBase Wed, 03 Mar 2021 23:16:07 23MarCET OPERATING GRANT FOR RARE DISEASE ASSOCIATIONS http://azorina.cc.cec.eu.int:8082/health/projects/20083278 Thu, 01 Jan 2009 00:00:00 0JanCET European Commission http://azorina.cc.cec.eu.int:8082/health/projects/20083278 Scientific support to the Rare Disease Task Force activities http://azorina.cc.cec.eu.int:8082/health/projects/20082291 Thu, 01 Jan 2009 00:00:00 0JanCET European Commission http://azorina.cc.cec.eu.int:8082/health/projects/20082291 EURORDIS_FY2010 http://azorina.cc.cec.eu.int:8082/health/projects/20093204 Fri, 01 Jan 2010 00:00:00 0JanCET European Commission http://azorina.cc.cec.eu.int:8082/health/projects/20093204 AP-HP_Porphyria_FY2011 http://azorina.cc.cec.eu.int:8082/health/projects/20103209 Sat, 01 Jan 2011 00:00:00 0JanCET European Commission http://azorina.cc.cec.eu.int:8082/health/projects/20103209 European Organisation for Rare Diseases http://azorina.cc.cec.eu.int:8082/health/projects/20103205 Sat, 01 Jan 2011 00:00:00 0JanCET European Commission http://azorina.cc.cec.eu.int:8082/health/projects/20103205 Assistance Publique Hôpitaux de Paris http://azorina.cc.cec.eu.int:8082/health/projects/20103201 Sat, 01 Jan 2011 00:00:00 0JanCET European Commission http://azorina.cc.cec.eu.int:8082/health/projects/20103201 European Surveillance of Congenital Anomalies http://azorina.cc.cec.eu.int:8082/health/projects/20102204 Sat, 01 Jan 2011 00:00:00 0JanCET European Commission http://azorina.cc.cec.eu.int:8082/health/projects/20102204 An EU Rare Diseases Registry for Wolfram Syndrome, Alstrom Syndrome and Bardet Biedl Syndrome http://azorina.cc.cec.eu.int:8082/health/projects/20101205 Sat, 01 Jan 2011 00:00:00 0JanCET European Commission http://azorina.cc.cec.eu.int:8082/health/projects/20101205 European registry and network for Intoxication type Metabolic Diseases http://azorina.cc.cec.eu.int:8082/health/projects/20101201 Sat, 01 Jan 2011 00:00:00 0JanCET European Commission http://azorina.cc.cec.eu.int:8082/health/projects/20101201 The European Multiple Sclerosis Platform http://azorina.cc.cec.eu.int:8082/health/projects/20113304 Sun, 01 Jan 2012 00:00:00 0JanCET European Commission http://azorina.cc.cec.eu.int:8082/health/projects/20113304 European Organisation for Rare Diseases http://azorina.cc.cec.eu.int:8082/health/projects/20113212 Sun, 01 Jan 2012 00:00:00 0JanCET European Commission http://azorina.cc.cec.eu.int:8082/health/projects/20113212 European Porphyria Network: providing better healthcare for patients and their families http://azorina.cc.cec.eu.int:8082/health/projects/20113205 Sun, 01 Jan 2012 00:00:00 0JanCET European Commission http://azorina.cc.cec.eu.int:8082/health/projects/20113205 The European Wilson's Disease Network http://azorina.cc.cec.eu.int:8082/health/projects/20113203 Sun, 01 Jan 2012 00:00:00 0JanCET European Commission http://azorina.cc.cec.eu.int:8082/health/projects/20113203 UNEW_FY2013 http://azorina.cc.cec.eu.int:8082/health/projects/20123307 Tue, 01 Jan 2013 00:00:00 0JanCET European Commission http://azorina.cc.cec.eu.int:8082/health/projects/20123307 EMSP_FY2013 http://azorina.cc.cec.eu.int:8082/health/projects/20123302 Tue, 01 Jan 2013 00:00:00 0JanCET European Commission http://azorina.cc.cec.eu.int:8082/health/projects/20123302 EURORDIS_FY2013 http://azorina.cc.cec.eu.int:8082/health/projects/20123301 Tue, 01 Jan 2013 00:00:00 0JanCET European Commission http://azorina.cc.cec.eu.int:8082/health/projects/20123301 ESPNreg_FY2013 http://azorina.cc.cec.eu.int:8082/health/projects/20123209 Tue, 01 Jan 2013 00:00:00 0JanCET European Commission http://azorina.cc.cec.eu.int:8082/health/projects/20123209 NEW e-HEALTH SERVICES FOR THE EUROPEAN REFERENCE NETWORK ON RARE ANAEMIAS http://azorina.cc.cec.eu.int:8082/health/projects/20121217 Tue, 01 Jan 2013 00:00:00 0JanCET European Commission http://azorina.cc.cec.eu.int:8082/health/projects/20121217 European Conference on Rare Diseases & Orphan Products 2014 Berlin http://azorina.cc.cec.eu.int:8082/health/projects/20134309 Wed, 01 Jan 2014 00:00:00 0JanCET European Commission http://azorina.cc.cec.eu.int:8082/health/projects/20134309 INSERM_FY2014 http://azorina.cc.cec.eu.int:8082/health/projects/20133305 Wed, 01 Jan 2014 00:00:00 0JanCET European Commission http://azorina.cc.cec.eu.int:8082/health/projects/20133305 EURORDIS_FY2014 http://azorina.cc.cec.eu.int:8082/health/projects/20133304 Wed, 01 Jan 2014 00:00:00 0JanCET European Commission http://azorina.cc.cec.eu.int:8082/health/projects/20133304 FIB-H12O_FY2014 http://azorina.cc.cec.eu.int:8082/health/projects/20133211 Wed, 01 Jan 2014 00:00:00 0JanCET European Commission http://azorina.cc.cec.eu.int:8082/health/projects/20133211 EUCERD Joint Action: working for rare diseases http://azorina.cc.cec.eu.int:8082/health/projects/20112201 Tue, 03 Jan 2012 00:00:00 0JanCET European Commission http://azorina.cc.cec.eu.int:8082/health/projects/20112201 Rare Diseases Portal http://azorina.cc.cec.eu.int:8082/health/projects/2006119 Thu, 04 Jan 2007 00:00:00 0JanCET European Commission http://azorina.cc.cec.eu.int:8082/health/projects/2006119 Establishment of an European Network of Rare Bleeding Disorders http://azorina.cc.cec.eu.int:8082/health/projects/2006118 Thu, 04 Jan 2007 00:00:00 0JanCET European Commission http://azorina.cc.cec.eu.int:8082/health/projects/2006118 European Porphyria Network: providing better healthcare for patients and their families http://azorina.cc.cec.eu.int:8082/health/projects/2006107 Thu, 04 Jan 2007 00:00:00 0JanCET European Commission http://azorina.cc.cec.eu.int:8082/health/projects/2006107 European Project for Rare Diseases National Plans Development http://azorina.cc.cec.eu.int:8082/health/projects/2007119 Fri, 04 Jan 2008 00:00:00 0JanCET European Commission http://azorina.cc.cec.eu.int:8082/health/projects/2007119 Development of Orphanet - The Rare Diseases Portal http://azorina.cc.cec.eu.int:8082/health/projects/20091215 Mon, 04 Jan 2010 00:00:00 0JanCET European Commission http://azorina.cc.cec.eu.int:8082/health/projects/20091215 Development of the European portal of rare diseases and orphan drugs http://azorina.cc.cec.eu.int:8082/health/projects/20102206 Tue, 04 Jan 2011 00:00:00 0JanCET European Commission http://azorina.cc.cec.eu.int:8082/health/projects/20102206 Inherited NeuRoMetabolic Diseases INFORMATION NETWORK http://azorina.cc.cec.eu.int:8082/health/projects/20121212 Fri, 04 Jan 2013 00:00:00 0JanCET European Commission http://azorina.cc.cec.eu.int:8082/health/projects/20121212 An EU rare diseases registry for Niemann-Pick Disease type A, B and C. http://azorina.cc.cec.eu.int:8082/health/projects/20121201 Fri, 04 Jan 2013 00:00:00 0JanCET European Commission http://azorina.cc.cec.eu.int:8082/health/projects/20121201 Information network on rare cancers http://azorina.cc.cec.eu.int:8082/health/projects/20111201 Thu, 05 Jan 2012 00:00:00 0JanCET European Commission http://azorina.cc.cec.eu.int:8082/health/projects/20111201 A European Network of Centres of Reference for Dysmorphology http://azorina.cc.cec.eu.int:8082/health/projects/2006122 Sat, 06 Jan 2007 00:00:00 0JanCET European Commission http://azorina.cc.cec.eu.int:8082/health/projects/2006122 EUROPEAN REFERENCE NETWORK OF EXPERT CENTRES IN RARE ANAEMIAS http://azorina.cc.cec.eu.int:8082/health/projects/20081210 Tue, 06 Jan 2009 00:00:00 0JanCET European Commission http://azorina.cc.cec.eu.int:8082/health/projects/20081210 European network for central hypoventilation syndromes : Optimizing health care to patients http://azorina.cc.cec.eu.int:8082/health/projects/20081206 Tue, 06 Jan 2009 00:00:00 0JanCET European Commission http://azorina.cc.cec.eu.int:8082/health/projects/20081206 European Haemophilia Network http://azorina.cc.cec.eu.int:8082/health/projects/20111207 Fri, 06 Jan 2012 00:00:00 0JanCET European Commission http://azorina.cc.cec.eu.int:8082/health/projects/20111207 The PRES European Network of Registries for Autoinflammatoy Diseases in childhood. http://azorina.cc.cec.eu.int:8082/health/projects/2007332 Mon, 07 Jan 2008 00:00:00 0JanCET European Commission http://azorina.cc.cec.eu.int:8082/health/projects/2007332 European Prevention Initiative for Dermatological Malignancies http://azorina.cc.cec.eu.int:8082/health/projects/2007101 Mon, 07 Jan 2008 00:00:00 0JanCET European Commission http://azorina.cc.cec.eu.int:8082/health/projects/2007101 European Register on Cushing’s Syndrome http://azorina.cc.cec.eu.int:8082/health/projects/2006117 Tue, 09 Jan 2007 00:00:00 0JanCET European Commission http://azorina.cc.cec.eu.int:8082/health/projects/2006117 EUROCAT: Surveillance of Congenital Anomalies in Europe http://azorina.cc.cec.eu.int:8082/health/projects/2006103 Tue, 09 Jan 2007 00:00:00 0JanCET European Commission http://azorina.cc.cec.eu.int:8082/health/projects/2006103 Patients' Consensus on Preferred Policy Scenarii for Rare Diseases http://azorina.cc.cec.eu.int:8082/health/projects/2007330 Wed, 09 Jan 2008 00:00:00 0JanCET European Commission http://azorina.cc.cec.eu.int:8082/health/projects/2007330 A reference network for Langerhans cell histiocytosis and associated syndrome in EU http://azorina.cc.cec.eu.int:8082/health/projects/2007120 Wed, 09 Jan 2008 00:00:00 0JanCET European Commission http://azorina.cc.cec.eu.int:8082/health/projects/2007120 Single Hub and Access point for paediatric Rheumatology in Europe http://azorina.cc.cec.eu.int:8082/health/projects/20111202 Mon, 09 Jan 2012 00:00:00 0JanCET European Commission http://azorina.cc.cec.eu.int:8082/health/projects/20111202 European Surgical Registry for Rare Endocrine Tumours http://azorina.cc.cec.eu.int:8082/health/projects/20121206 Wed, 09 Jan 2013 00:00:00 0JanCET European Commission http://azorina.cc.cec.eu.int:8082/health/projects/20121206 European Haemophilia Safety Surveillance System http://azorina.cc.cec.eu.int:8082/health/projects/2007107 Thu, 10 Jan 2008 00:00:00 0JanCET European Commission http://azorina.cc.cec.eu.int:8082/health/projects/2007107 Dissemination and Implementation of the Standards of Care for Duchenne Muscular Dystrophy in Europe (including Eastern countries) http://azorina.cc.cec.eu.int:8082/health/projects/20091205 Sat, 10 Jan 2009 00:00:00 0JanCET European Commission http://azorina.cc.cec.eu.int:8082/health/projects/20091205 4th Eastern European Conference for Rare Diseases and Orphan Drugs "TOGETHER FOR INTEGRATIVE APPROACH TO RARE DISEASES" http://azorina.cc.cec.eu.int:8082/health/projects/20084253 Thu, 01 Jan 1970 01:00:00 1JanCET European Commission http://azorina.cc.cec.eu.int:8082/health/projects/20084253 European network and registry for homocysinurias and methylation defects http://azorina.cc.cec.eu.int:8082/health/projects/20121202 Thu, 01 Jan 1970 01:00:00 1JanCET European Commission http://azorina.cc.cec.eu.int:8082/health/projects/20121202 Building Consensus and Synergies for the EU Registration of Rare Disease Patients http://azorina.cc.cec.eu.int:8082/health/projects/20101202 Thu, 01 Jan 1970 01:00:00 1JanCET European Commission http://azorina.cc.cec.eu.int:8082/health/projects/20101202 National policies and plans for rare diseases in Europe : shared experiences and recommandations http://azorina.cc.cec.eu.int:8082/health/projects/20084251 Thu, 01 Jan 1970 01:00:00 1JanCET European Commission http://azorina.cc.cec.eu.int:8082/health/projects/20084251 Social Economic Burden and Health-Related Quality Of Life in Patients with Rare Diseases in Europe http://azorina.cc.cec.eu.int:8082/health/projects/20091204 Thu, 01 Jan 1970 01:00:00 1JanCET European Commission http://azorina.cc.cec.eu.int:8082/health/projects/20091204 European registry of patients with McArdle disease and very rare muscle glycogenolytic disorders (MGD) with exercise intolerance as the major symptom (PR-MDMGD) http://azorina.cc.cec.eu.int:8082/health/projects/20121214 Thu, 01 Jan 1970 01:00:00 1JanCET European Commission http://azorina.cc.cec.eu.int:8082/health/projects/20121214 European Network of Reference for Rare Pediatric Neurological Diseases http://azorina.cc.cec.eu.int:8082/health/projects/2007122 Thu, 01 Jan 1970 01:00:00 1JanCET European Commission http://azorina.cc.cec.eu.int:8082/health/projects/2007122