Second Programme of Community action in the Field of Health 2008-2013
EUROPEAN REFERENCE NETWORK OF EXPERT CENTRES IN RARE ANAEMIAS [ENERCA 3]
The main objective of ENERCA 3 is the establishment of a European Reference Network (ERN) of Expert Centres (EC) in Rare Anaemias (RA). Identify appropriate centres of expertise (Expert Centres) throu...
The main objective of ENERCA 3 is the establishment of a European Reference Network (ERN) of Expert Centres (EC) in Rare Anaemias (RA). Identify appropriate centres of expertise (Expert Centres) throughout each national territory involved in ENERCA 3 Project is one of its most important goals. The ERN will establish a link between the ECs and will serve as a platform for foster their participation respecting the national competences and rules in regard of their authorisation or recognition. Once established the ERN will be responsible of organize healthcare pathways for patients suffering from rare anaemias through the establishment of cooperation with relevant experts and exchange of professionals and expertise within country or from abroad when necessary. The ECs will include in their plans or strategies the necessary conditions for the diffusion and mobility of expertise and knowledge on order to facilitate the treatment of patients in their proximity. One of the most important tools for ENERCA activities will be the Web site (www.enerca.org), established by ENERCA 1 and consolidated by ENERCA 2. The Website will be also very useful for giving support to the use of information and communication technologies such as telemedicine where it is necessary to ensure distant access to the specific healthcare needed.
Start date: 01/06/2009 - End date: 01/06/2012
Call: Promote Health (Hp-2008)
Topic: Rare diseases and disorders