First Programme of Community action in the field of public health (2003-2008)
Rare Diseases Portal [RD Portal]
The rare diseases portal is designed to improve the services already provided by Orphanet to the public at large. A comprehensive set of information on rare diseases (RDs) will be accessible from a po...
The rare diseases portal is designed to improve the services already provided by Orphanet to the public at large. A comprehensive set of information on rare diseases (RDs) will be accessible from a portal in six languages and will be fully accessible to visually and physically impaired users by developing all the Orphanet screens according to international norms in order to be classified AAA for the disabled. It will include a comprehensive encyclopaedia of rare diseases, written by experts and peer-reviewed, a directory of professional services
throughout 35 countries, including a directory of centres of reference in Europe, and a database of orphan drugs providing information on their stage of development and availability in the Member States.
Start date: 01/04/2007 - End date: 01/04/2010
Call: Health Information (Hi 2006)
Topic: Rare diseases and disorders