Accessibility / Projects

Second Programme of Community action in the Field of Health 2008-2013
EURORDIS_FY2013 [EURORDIS_FY2013]
EURORDIS is a patient-driven alliance of Patient Organisations(POs) and individuals active in the field of rare diseases (RD). It represents the voice of approximately 30 million citizens in the EU.

...
EURORDIS is a patient-driven alliance of Patient Organisations(POs) and individuals active in the field of rare diseases (RD). It represents the voice of approximately 30 million citizens in the EU.

EURORDIS mission is to build a strong pan-European community of POs and People Living With RD (PLWRD), to be their voice at the European level and to fight against the impact of RD on their lives.

To this end, EURORDIS undertakes activities on behalf of its members:

- Empowering RD patient groups
- Advocating RD as a public health priority
- Raising public awareness on RD
- Improving access to information, treatment, care and support for PLWRD
- Improving quality of life
- Networking activities
- Capacity building
- Encouraging good practices in relation to these issues
- Promoting scientific and clinical research on RD
- Promoting the development of treatments and drugs for people living with RD

EURORDIS plays a pivotal role in the implementation of the EU strategy on RD: participation to the EU Committee of Experts on RD (EUCERD) and related road map,elaboration of National Plans or Strategies on RD, European Commission Communication and Council Recommendations in the field of rare diseases, Cross Border Health Care (CBHC) and patient`s mobility, as well as in the implementation of EU Regulations on Orphan Drugs, Paediatrics and Advanced Therapies Medicinal Products (ATMPs) through participation in the EMA Scientific Committees.
Start date: 01/01/2013 - End date: 01/01/2014

Call: Generate And Disseminate Health Information And Knowledge (Hi-2012)
Topic: Accessibility
Second Programme of Community action in the Field of Health 2008-2013
SANL_FY2013 [SANL_FY2013]
Stichting Aids Fonds - STOP AIDS NOW - Soa Aids Nederland (SANL) is host organisation of the network AIDS Action Europe (AAE). SANL is a national organisation that aims to prevent sexually transmitted...
Stichting Aids Fonds - STOP AIDS NOW - Soa Aids Nederland (SANL) is host organisation of the network AIDS Action Europe (AAE). SANL is a national organisation that aims to prevent sexually transmitted infections, including HIV, and improve the quality of STI control in the Netherlands. The operating grant is requested for the core work programme of AAE.
AAE`s mission is to unite civil society to work towards a more effective response to the HIV epidemic in Europe and Central Asia. We strive for better protection of human rights and universal access to prevention, treatment, care and support. We work towards a reduction of health inequalities focussing on most at risk populations and the epidemic in Central and Eastern Europe and Central Asia.
We envision a world where people living with and affected by HIV and AIDS can enjoy life free from stigma, discrimination, and persecution, and have universal access to prevention, treatment, care and support.
AAE`s policy, advocacy and linking and learning work is shaped by a set of core values: be accountable and hold others accountable; be transparent; be inclusive; put in practice the GIPA principle (greater involvement of people living with HIV); work from a human rights based approach; facilitate a networking and partnership culture; be cost-effective; and make a difference.
Our mission is communicated through our website, in our promotion leaflet, work plans and annual reports, among others.
Start date: 01/01/2013 - End date: 01/01/2014

Call: Promote Health (Hp-2012)
Topic: Accessibility
Second Programme of Community action in the Field of Health 2008-2013
European Conference on Rare Diseases & Orphan Products 2014 Berlin [ECRD 2014]
The objectives of the European Conference on Rare Diseases & Orphan Products are:

- To disseminate the most up-to-date health information related to the rare disease environment to all relevant stake...
The objectives of the European Conference on Rare Diseases & Orphan Products are:

- To disseminate the most up-to-date health information related to the rare disease environment to all relevant stakeholders (patients and patients’ representatives, academics, health care professionals, industry and policy makers);

- To demonstrate the importance of EU actions in the field of rare diseases and review progress made to date;

- To elaborate strategies and mechanisms for developing further exchange of information between stakeholders: people living with rare diseases, volunteers, health professionals, policy makers, researchers and industry at national and EU levels;

- To exchange knowledge and best practices on all relevant health issues related to the rare disease environment;

- To sustain efforts for rare disease policies at both the European and the national level;

- To stimulate dialogue on policies for rare diseases in some of the Member States having recently joined the EU;

- To present specific, achievable objectives at both European and national levels in order to reduce health inequalities for rare disease patients.


Start date: 01/01/2014 - End date: 01/09/2014

Call: Generate And Disseminate Health Information And Knowledge (Hi-2013)
Topic: Accessibility
Second Programme of Community action in the Field of Health 2008-2013
EURORDIS_FY2014 [EURORDIS_FY2014]
EURORDIS is a patient-driven alliance of Patient Organisations(POs) and individuals active in the field of rare diseases (RDs). It represents the voice of approximately 30 million citizens in the EU.
...
EURORDIS is a patient-driven alliance of Patient Organisations(POs) and individuals active in the field of rare diseases (RDs). It represents the voice of approximately 30 million citizens in the EU.

EURORDIS` mission is to build a strong pan-European community of POs and People Living With RDs (PLWRD), to be their voice at the European level and to fight against the impact of RDs on their lives.

To this end, EURORDIS undertakes activities on behalf of its members:

• Empowering RD patient groups
• Advocating RDs as a public health priority
• Raising public awareness on RDs
• Improving access to information, treatment, care and support for PLWRD
• Improving quality of life
• Encouraging good practices in relation to these issues
• Promoting scientific and clinical research on RDs
• Promoting the development of treatments and medicines for people with RDs

EURORDIS plays a pivotal role in:
- the implementation of the EU strategy on RDs(Commission Communication and Council Recommendations), through its participation in the EU Committee of Experts on RD (EUCERD), as well as in the elaboration and monitoring of National Plans/Strategies on RDs
- the shaping and implementation of:
the specific EU health policies and legislations impacting on the RD field (EU Directive Cross Border Healthcare) through development of European Reference Networks for RD, as well as participation in the EUnetHTA Stakeholders Forum;
the EU Regulations on Medicines (Orphan Medicinal Products, Paediatrics, Advanced Therapies) through participation in the EMA Scientific Committees which also serves at improving the EU framework for drug development, approval and access to address RD patients` needs
- the revision of EU legislation on Clinical Trials, Data Protection and Transparency.
Start date: 01/01/2014 - End date: 01/01/2015

Call: Generate And Disseminate Health Information And Knowledge (Hi-2013)
Topic: Accessibility
Second Programme of Community action in the Field of Health 2008-2013
SOEEF_FY2014 [SOEEF_FY2014]
SO Europe Eurasia Foundation is a not for profit organization that provides year-round public health services to children and adults with intellectual disabilities through grass roots sports training ...
SO Europe Eurasia Foundation is a not for profit organization that provides year-round public health services to children and adults with intellectual disabilities through grass roots sports training and competition, multi-disciplinary health screening and intervention programs, promoting public health and early childhood development in all 28 EUan Union Member States, serving over 450,000 participating athletes. SO Europe Eurasia Foundation (SOEEF)supports public health activities operating from offices in Dublin, Brussels and Warsaw, and supports the presence of national Special Olympics offices in all 28 Member States, SO cooperate and assist local services, agencies and organisations dedicated to the promotion of physical fitness and mental well being of people with intellectual disabilities and develops activities and programmes across EU and across borders that enables Special Olympics athletes to take a fuller and more active role in their community and society in general.
SOEE plays an active role in supporting the development of 28 National Special Olympics Programmes in EU- assisting them to become better known, better funded and more successful in both expanding and improving physical and mental health through sports opportunities and other initiatives which include
The Healthy Athletes program - multidisciplinary public health screening and intervention program for all participating Special Olympics athletes. Healthy Athletes is designed to improve the athlete`s ability to train and compete, as well as offer positive health outcomes for their daily lives. It has become one of the world`s leaders in offering specialized health training courses on the health status of persons with intellectual disabilities, as well as how to treat this often marginalized population. Healthy Athletes consists of seven disciplinary screening programs, including: vision care, oral health, hearing care, physical therapy, standard sports physicals, podiatric medicine, and nutrition counseling. Special Olympics has the potential to provide a number of health interventions to provide sustained positive impact.
Start date: 01/01/2014 - End date: 01/01/2015

Call: Promote Health (Hp-2013)
Topic: Accessibility