The Conference of the 8th EPRD, aims at reaching these objectives:
1.Increase awareness and information on the concept of patient empowerment, in its two complementary dimensions:
a)improvement of in...
The Conference of the 8th EPRD, aims at reaching these objectives:
1.Increase awareness and information on the concept of patient empowerment, in its two complementary dimensions:
a)improvement of individual patients’capabilities to effectively self-manage their chronic diseases & the different impacts these conditions shall have on patients’daily lives;
b) enhancement of patient groups’capacities to participate efficiently in health policies at national and at Eu levels.
2.Demonstrate that empowered patients with chronic diseases and their organisations are a resource and not a cost, contributing to face the challenges resulting from the ageing of the EU population and the crisis of the EU social model, sharing with the institutions the responsibility of finding the best balance between the interest of patients and the sustainability of the system.
3.Encourage organisations of patients with chronic diseases(OPWCD) to take the lead in the debate on patient empowerment and to actively participate in the health policies at national & at EU levels.
4.Compare the different models of networks, gathering OPWCD, both at nat. and EU levels, and analyse their respective capacities to:
-engage a wide scope of organisations, helping them to overcome their differences and potential conflicts;
-identify and efficiently voice the common interests of patients in the health policy-making;
-empower local & national patient organisations.
SPECIFIC OBJECTIVES:
a)share best practices (BP) of different citizens and patients’ organisations, coming from a wide range of EU countries on:
-empowerment of individual patients: information, support and capacity-building of individual patients with chronic diseases, as well as their relatives, who usually play an essential role in helping them to deal with their conditions, including their social, psychological, and other impacts. This includes partnerships between patients’ organisations and other stakeholders, i.e. health professionals, public institutions, media, healthcare industry,etc.
-empowerment of patients’ organisations by the creation of national or Eu. networks, which transfer to them competences and tools, help them create partnerships,identify common objectives,etc., so as to have an effective impact on the health policy-making.
The BP will come from 3 different sources:
-the 40 BP active involvement of active ageing citizens in the health policy collected in the framework of 6th EPRD(2012)(www.activecitizenship.net/files/take_action/active_ageing_eu_policy.pdf);
-experiences brought by the members of the Scientific Committee;
-EU projects dealing with patient empowerment, such as EUPATI (www.patientsacademy.eu).
b)identify shared Recommendations on the essential role of citizens and patients’ org. in the empowerment and how this could be better taken into account in the framework of the EU reflection process on chronic diseases.
This conference will be an occasion for national and EU associations working in chronic diseases to meet with each other, share experiences and enhance their collaboration at EU level, developing a strong cross-cutting alliance on the empowerment of patients with chronic diseases, in open debate with the Eu institutions and the other healthcare stakeholders.