eHealth + telemedecine / Projects

Second Programme of Community action in the Field of Health 2008-2013
Cross-Border Patient Registries Initiative [PARENT]
The overall objective is to support member states in developing comparable and coherent patient registries in fields of identified importance (e.g. chronic diseases, rare diseases, medical technology)...
The overall objective is to support member states in developing comparable and coherent patient registries in fields of identified importance (e.g. chronic diseases, rare diseases, medical technology) with the aim to rationalize and harmonize the development and governance of patient registries, thus enabling analyses of secondary data for public health and research purposes. (Please find the entire text in the accompanying Word document, Annex 1b).
Start date: 01/05/2012 - End date: 01/12/2015

Call: Generate And Disseminate Health Information And Knowledge (Hi-2010)
Topic: eHealth + telemedecine
3rd Health Programme (2014-2020)
Promoting Implementation of Recommendations on Policy, Information and Data for Rare Diseases [RD-ACTION]
Rare diseases (RD) have been identified as one of the paradigmatic fields in which actions conducted at the European level constitute the adequate response to their specific problems: poor recognition...
Rare diseases (RD) have been identified as one of the paradigmatic fields in which actions conducted at the European level constitute the adequate response to their specific problems: poor recognition leading to diagnostic delay and inappropriate management including adapted social services, poor health outcomes, social burden, limited knowledge on natural history and pathophysiology leading to an insufficient development of new therapies. The low prevalence and the specificity of RD make that a global, multi-stakeholder approach, intended to gather specific expertise and to build shared strategies is necessary to address these issues.
The general objectives of RD-Action are to:
▪ Support the further development and sustainability of the Orphanet database, the biggest global repository of information on RD
▪ Contribute to solutions to ensure an appropriate codification of RD in health information systems
▪ Continue implementation of the priorities identified in Council Recommendation 2009/C151/02 and the Commission Communication (COM 2008 679) on RD, with a view to ensuring the sustainability of the recommended priority actions and to support the work of the Commission Expert Group on Rare Diseases (CEGRD).
This JA will expand and consolidate the achievements of the former JAs on RD supported by the European Commission: the Orphanet JA and the EUCERD JA. More precisely, this proposal has the ambition to help member states to implement the recommended measures adopted or to be adopted by the CEGRD and to produce the data necessary for countries to do so. Interactions between the production of data at the Orphanet database level and the implementation of policy priorities including codification will be strengthened during this JA.RD-Action large geographical coverage is key to success as it will promote the transfer of European recommendations into national policies and the collection of information and concerns from MS to the CEGRD, thus to the European Commission.

Start date: 01/06/2015 - End date: 31/07/2018

Call: Grants for actions co-financed with Member State authorities 2014 (Joint Actions)
Topic: eHealth + telemedecine
Second Programme of Community action in the Field of Health 2008-2013
Telehealth Services Code of Practice for Europe [TeleSCoPE]
The need for telehealth responds to most people’s wish to stay at home. Telehealth contributes to the growing needs of people with chronic and long-term conditions (by for example making sure that h...
The need for telehealth responds to most people’s wish to stay at home. Telehealth contributes to the growing needs of people with chronic and long-term conditions (by for example making sure that hospital or institutionally based services are better targeted); and to the preventative health agenda (by helping people to better manage their own health). The aims of the project are to influence European-wide confidence and acceptance by influencing common approach on political level (harmonisation), semantic level (agreeing common priorities), level of education and awareness raising (evaluation, monitoring and analysis and reflection on good practice).
Wide use of the European Code of Practice could impact positively on economic growth and competition and on the competitiveness of manufacturers supplying ICT to the health sector.

Start date: 01/07/2010 - End date: 01/10/2013

Call: Improve Citizen''S Health Security (Hs-2009)
Topic: eHealth + telemedecine
First Programme of Community action in the field of public health (2003-2008)
European network of paediatric Hodgkin’s lymphoma – European-wide organisation of quality controlled treatment [Paediatric Hodgkin Network]
Build on the experience from national trials for paediatric Hodgkin`s lymphoma (PHL) experts from 12 EU countries decided on a common protocol to individualise PHL treatment. The aims are high cure ra...
Build on the experience from national trials for paediatric Hodgkin`s lymphoma (PHL) experts from 12 EU countries decided on a common protocol to individualise PHL treatment. The aims are high cure rates and significant reduction of late effects (e.g. secondary cancer). Treatment decisions depend on exact staging and early response assessment using CT, MRI and PET. Due to limited experience with this rare disease in local hospitals, participating countries decided either to join a central reference system (10 countries), successfully working in Germany since 1990, or to built up own systems (France and Poland).
Start date: 01/08/2008 - End date: 01/08/2011

Call: Health Information (Hi 2007)
Topic: eHealth + telemedecine
Second Programme of Community action in the Field of Health 2008-2013
High Level eHealth Conference 2012 [EHEALTH]
The forthcoming Danish Presidency of the Council of the European Union is to hold the next High Level eHealth Conference. Denmark together with the European Commission and the Member States, recognize...
The forthcoming Danish Presidency of the Council of the European Union is to hold the next High Level eHealth Conference. Denmark together with the European Commission and the Member States, recognize eHealth as a significant tool to modernize national healthcare systems and to improve their effectiveness as well as to make healthcare systems more accessible to all. eHealth is a key element in the context of cross-border healthcare, health professional shortages and the ageing society.
The overall objectives of the High Level eHealth Conference 2012 is to showcase running solutions with focus on the chronically ill and to discuss aspects of efficient implementation of eHealth solutions through standards, and efficient governance structures. Furthermore the aim is to look into aspects of innovation where eHealth is seen as a means for improved quality, efficiency and effectiveness under the heading "smart health - better lifes".

The themes to be addressed during the event are:

- Coherent pathways across sectors - what can ICTdo?
- Efficient support of chronically ill- eHealth as a means promoting empowerment
- Efficient uptake of eHealth ~ how can ilnplementation of eHealth be governed?
- eHealth as a means and not an end-what do clinicians need?
- Cross-border healthcare - opportunities and challenges

The conference enhances the visibility of eHealth as a means to improve healthcare. Furthermore it contributes to put the EU 2020 Strategy into context in relation to eHealth. The 2020 strategy supports the application of information technologies, well defined in the EU Digital Agenda flagship. The future EU eHealth Action Plan to be presented in 2012 also aims to contribute to urge the development of eHealth services, which is a clear message to all Member States that issues related to eHealth have been put high on (he agenda of the European Union. In 2012 the conference will be carried out for the tenth time ensuring the continued focus on eHealth.

Member States has strenghtened their political commitment during past years accompanied by a deepened cooperation on eHealth in Europe, embodied by the Member State led mechanism "eHealth Governance initiative". The initiative allows concrete actions to be implemented, aiming at enabling the deployment and the use of eHealth services in the European Union, The conference will support increased collaboration on eHealth across member-states and highlight issues related to cross-border healthcare.

Furthermore under the auspices of the Directive 20n/24/EU a voluntary network of competent authorities is to be established. The task of the network is to address a number of central issues impeding cross border healthcare. All of these initiatives within eHealth clearly illustrates the importance of eHealth and Us centrality on the European agenda. It is planned that this voluntary network will have its first meeting during the High Level eHealth Conference in Copenhagen.
This conference was funded by the Health Programme (DG SANCO) and DG INFSO.
Start date: 07/05/2012 - End date: 07/01/2013

Call: Generate And Disseminate Health Information And Knowledge (Hi-2010)
Topic: eHealth + telemedecine