Pharmaceuticals / Projects

Second Programme of Community action in the Field of Health 2008-2013
Scientific support to the Rare Disease Task Force activities [RDTF scientific support]
The objective is to promote action on the prevention of rare diseases (RD) and to provide analysis and technical assistance in support of the development or implementation of a policy in the area of r...
The objective is to promote action on the prevention of rare diseases (RD) and to provide analysis and technical assistance in support of the development or implementation of a policy in the area of rare diseases and orphan drugs (OD).
Start date: 01/01/2009 - End date: 01/03/2012

Call: Promote Health (Hp-2008)
Topic: Pharmaceuticals
Second Programme of Community action in the Field of Health 2008-2013
EURORDIS_FY2010 [EURORDIS_FY2010]
EURORDIS is a patient-driven alliance of Patient Organisations (POs) and individuals active in the field of rare diseases (RD). It represents the voice of an estimated 29 million citizens in the EU.
...
EURORDIS is a patient-driven alliance of Patient Organisations (POs) and individuals active in the field of rare diseases (RD). It represents the voice of an estimated 29 million citizens in the EU.

EURORDIS mission is to build a strong pan-European community of POs and People Living With RD (PLWRD), to be their voice at the European level and to fight against the impact of RD on their lives.

To this end, EURORDIS undertakes activities on behalf of its members, notably in favour of:

• Empowering RD patient groups
• Advocating RD as a public health priority
• Raising public awareness on RD (national and international levels)
• Improving access to information, treatment, care and support for PLWRD, including support to families
• Improving quality of life
• Encouraging good practices in relation to these issues
• Promoting scientific and clinical research on RD
• Developing treatments and drugs for people with RD

EURORDIS plays a pivotal role in the definition and implementation of the EU strategy on RD (EC Communication, Dec.2008 and Council Recommendations, June 2009).
Start date: 01/01/2010 - End date: 01/01/2011

Call: Promote Health (Hp-2009)
Topic: Pharmaceuticals
Second Programme of Community action in the Field of Health 2008-2013
European network for HTA Joint Action [EUnetHTA JA]
The overarching objective of the Joint Action (JA) on Health Technology Assessment (HTA), EUnetHTA Joint Action, including work on relative effectiveness assessment (REA) of pharmaceuticals is to put ...
The overarching objective of the Joint Action (JA) on Health Technology Assessment (HTA), EUnetHTA Joint Action, including work on relative effectiveness assessment (REA) of pharmaceuticals is to put into practice an effective and sustainable HTA collaboration in Europe that brings added value at the European, national and regional level. The JA brings together 34 HTA agencies and institutional producers of HTA and assessments of pharmaceuticals in 24 EU and 1 EEA/EFTA country (as of November 2010). The JA facilitates solutions to overcome barriers to collaboration and facilitates national solutions to deliver context specific reporting of HTA results.
Start date: 01/01/2010 - End date: 01/02/2013

Call: Generate And Disseminate Health Information And Knowledge (Hi-2009)
Topic: Pharmaceuticals
Second Programme of Community action in the Field of Health 2008-2013
European Organisation for Rare Diseases [EURORDIS_FY2011]
EURORDIS is a patient-driven alliance of Patient Organisations(POs) and individuals active in the field of rare diseases (RD). It represents the voice of an estimated 29 million citizens in the EU.

E...
EURORDIS is a patient-driven alliance of Patient Organisations(POs) and individuals active in the field of rare diseases (RD). It represents the voice of an estimated 29 million citizens in the EU.

EURORDIS mission is to build a strong pan-European community of Patient Organisations and people living with RD, to be their voice at the European level and to fight against the impact of RD on their lives.

To this end, EURORDIS undertakes activities on behalf of its members:

• Empowering RD patient groups
• Advocating RD as a public health priority
• Raising public awareness on RD
• Improving access to information, treatment, care and support for people living with RD
• Improving quality of life
• Encouraging good practices in relation to these issues
• Promoting scientific and clinical research on RD
• Developing treatments and drugs for people with RD

EURORDIS plays a pivotal role in the implementation of the EU strategy on RD (EC Communication, Dec.2008 and Council Recommendations, June 2009), in the EU Committee of Experts on RD and in the elaboration of National Plans or Strategies on RD.
Start date: 01/01/2011 - End date: 01/01/2012

Call: Promote Health (Hp-2010)
Topic: Pharmaceuticals
Second Programme of Community action in the Field of Health 2008-2013
European Organisation for Rare Diseases [EURORDIS_FY2012]
EURORDIS is a patient-driven alliance of Patient Organisations(POs) and individuals active in the field of rare diseases (RD). It represents the voice of an estimated 29 million citizens in the EU.

E...
EURORDIS is a patient-driven alliance of Patient Organisations(POs) and individuals active in the field of rare diseases (RD). It represents the voice of an estimated 29 million citizens in the EU.

EURORDIS mission is to build a strong pan-European community of POs and People Living With RD (PLWRD), to be their voice at the European level and to fight against the impact of RD on their lives.

To this end, EURORDIS undertakes activities on behalf of its members:

- Empowering RD patient groups
- Advocating RD as a public health priority
- Raising public awareness on RD
- Improving access to information, treatment, care and support for PLWRD
- Improving quality of life
- Encouraging good practices in relation to these issues
- Promoting scientific and clinical research on RD
- Promoting the development of treatments and drugs for people with RD

EURORDIS plays a pivotal role in the implementation of the EU strategy on RD (EC Communication and Council Recommendations), in the EU Committee of Experts on RD and in the elaboration of National Plans or Strategies on RD.
Start date: 01/01/2012 - End date: 01/01/2013

Call: Promote Health (Hp-2010)
Topic: Pharmaceuticals