Pharmaceuticals / Projects

Second Programme of Community action in the Field of Health 2008-2013
Scientific support to the Rare Disease Task Force activities [RDTF scientific support]
The objective is to promote action on the prevention of rare diseases (RD) and to provide analysis and technical assistance in support of the development or implementation of a policy in the area of r...
The objective is to promote action on the prevention of rare diseases (RD) and to provide analysis and technical assistance in support of the development or implementation of a policy in the area of rare diseases and orphan drugs (OD).
Start date: 01/01/2009 - End date: 01/03/2012

Call: Promote Health (Hp-2008)
Topic: Pharmaceuticals
Second Programme of Community action in the Field of Health 2008-2013
EURORDIS_FY2010 [EURORDIS_FY2010]
EURORDIS is a patient-driven alliance of Patient Organisations (POs) and individuals active in the field of rare diseases (RD). It represents the voice of an estimated 29 million citizens in the EU.
...
EURORDIS is a patient-driven alliance of Patient Organisations (POs) and individuals active in the field of rare diseases (RD). It represents the voice of an estimated 29 million citizens in the EU.

EURORDIS mission is to build a strong pan-European community of POs and People Living With RD (PLWRD), to be their voice at the European level and to fight against the impact of RD on their lives.

To this end, EURORDIS undertakes activities on behalf of its members, notably in favour of:

• Empowering RD patient groups
• Advocating RD as a public health priority
• Raising public awareness on RD (national and international levels)
• Improving access to information, treatment, care and support for PLWRD, including support to families
• Improving quality of life
• Encouraging good practices in relation to these issues
• Promoting scientific and clinical research on RD
• Developing treatments and drugs for people with RD

EURORDIS plays a pivotal role in the definition and implementation of the EU strategy on RD (EC Communication, Dec.2008 and Council Recommendations, June 2009).
Start date: 01/01/2010 - End date: 01/01/2011

Call: Promote Health (Hp-2009)
Topic: Pharmaceuticals
Second Programme of Community action in the Field of Health 2008-2013
Stichting Health Action International [HAI_FY2011]
Health Action International (HAI) Europe is a non-profit, independent, European network of consumer groups, public interest NGOs, healthcare providers, academics and individuals.HAI Europe’s mission...
Health Action International (HAI) Europe is a non-profit, independent, European network of consumer groups, public interest NGOs, healthcare providers, academics and individuals.HAI Europe’s mission and goals follow the overarching global work programme set every 5 years.HAI Europe devises plans and strategies for medicines’ policy issues in Europe and acts as a regional centre.

HAI Europe’s mission is:
-to increase access to essential medicines = medicines for priority health needs are available, accessible and affordable for all;
-to improve the rational use of medicines = citizens receive medication appropriate to their clinical needs, in tailored doses, for an adequate period of time,at the lowest cost to them and their community.
HAI works to achieve these goals through research excellence and evidence-based advocacy.
Vision: Poverty and social injustice represent the greatest barriers to sustainable health and development. HAI works for just and equitable societies where people can participate in decisions affecting their health and well being, including the allocation of resources.
Start date: 01/01/2011 - End date: 01/01/2012

Call: Promote Health (Hp-2010)
Topic: Pharmaceuticals
Second Programme of Community action in the Field of Health 2008-2013
European Organisation for Rare Diseases [EURORDIS_FY2011]
EURORDIS is a patient-driven alliance of Patient Organisations(POs) and individuals active in the field of rare diseases (RD). It represents the voice of an estimated 29 million citizens in the EU.

E...
EURORDIS is a patient-driven alliance of Patient Organisations(POs) and individuals active in the field of rare diseases (RD). It represents the voice of an estimated 29 million citizens in the EU.

EURORDIS mission is to build a strong pan-European community of Patient Organisations and people living with RD, to be their voice at the European level and to fight against the impact of RD on their lives.

To this end, EURORDIS undertakes activities on behalf of its members:

• Empowering RD patient groups
• Advocating RD as a public health priority
• Raising public awareness on RD
• Improving access to information, treatment, care and support for people living with RD
• Improving quality of life
• Encouraging good practices in relation to these issues
• Promoting scientific and clinical research on RD
• Developing treatments and drugs for people with RD

EURORDIS plays a pivotal role in the implementation of the EU strategy on RD (EC Communication, Dec.2008 and Council Recommendations, June 2009), in the EU Committee of Experts on RD and in the elaboration of National Plans or Strategies on RD.
Start date: 01/01/2011 - End date: 01/01/2012

Call: Promote Health (Hp-2010)
Topic: Pharmaceuticals
Second Programme of Community action in the Field of Health 2008-2013
European Organisation for Rare Diseases [EURORDIS_FY2012]
EURORDIS is a patient-driven alliance of Patient Organisations(POs) and individuals active in the field of rare diseases (RD). It represents the voice of an estimated 29 million citizens in the EU.

E...
EURORDIS is a patient-driven alliance of Patient Organisations(POs) and individuals active in the field of rare diseases (RD). It represents the voice of an estimated 29 million citizens in the EU.

EURORDIS mission is to build a strong pan-European community of POs and People Living With RD (PLWRD), to be their voice at the European level and to fight against the impact of RD on their lives.

To this end, EURORDIS undertakes activities on behalf of its members:

- Empowering RD patient groups
- Advocating RD as a public health priority
- Raising public awareness on RD
- Improving access to information, treatment, care and support for PLWRD
- Improving quality of life
- Encouraging good practices in relation to these issues
- Promoting scientific and clinical research on RD
- Promoting the development of treatments and drugs for people with RD

EURORDIS plays a pivotal role in the implementation of the EU strategy on RD (EC Communication and Council Recommendations), in the EU Committee of Experts on RD and in the elaboration of National Plans or Strategies on RD.
Start date: 01/01/2012 - End date: 01/01/2013

Call: Promote Health (Hp-2010)
Topic: Pharmaceuticals