Impementation / Projects

Second Programme of Community action in the Field of Health 2008-2013
Development of Orphanet - The Rare Diseases Portal [RDPortal2]
RDPortal2 aims to provide the community at large, via a user-friendly portal in 5 languages, with comprehensive information in order to contribute to the improvement of the diagnosis, care and treatme...
RDPortal2 aims to provide the community at large, via a user-friendly portal in 5 languages, with comprehensive information in order to contribute to the improvement of the diagnosis, care and treatment of patients with rare diseases (RD), and to map healthcare services in the EU and build indicators An inventory of RD and an encyclopedia of RD aims to help involve the international community in producing knowledge on RD. RDPortal2 aims to improve knowledge of the characteristics and epidemiology of RD by collecting and disseminating this information. A tool to retrieve possible diagnoses through a search by clinical signs and symptoms will assist diagnosis. A directory of professional services throughout Europe is provided with the aim of contributing to the appropriate use of expert clinical services and promote quality assurance in laboratories offering medical genetic testing. A directory of patient organisations will help fight isolation and empower patients. Comprehensible information on the stage of development of orphan drugs and their availability in MS will be provided.
Start date: 01/04/2010 - End date: 01/04/2011

Call: Promote Health (Hp-2009)
Topic: Impementation
Second Programme of Community action in the Field of Health 2008-2013
Development of the European portal of rare diseases and orphan drugs [JA-Orphanet Europe]
The objective is to provide the community at large with an inventory of RD, an encyclopaedia in as many languages as possible, and a directory of expert services in the participating countries. The pr...
The objective is to provide the community at large with an inventory of RD, an encyclopaedia in as many languages as possible, and a directory of expert services in the participating countries. The project aims to improve the update of the encyclopaedia and the update of the directory of services, to put in place a process to ensure swift management of translations, swift collection of data and validation by national health authorities before publication. The project will also improve the governance of Orphanet to ensure its mission at international level. The website will be adapted to offer national front pages in national language(s), and the possibility to disseminate information on national policy documents and national events. Each Member State will benefit from the core infrastructure already developed and will have the opportunity to offer its citizens a national portal at a marginal cost. All the collected information will serve as a source to map health care services in Europe and to build indicators.
Start date: 01/04/2011 - End date: 01/01/2015

Call: Promote Health (Hp-2010)
Topic: Impementation
Second Programme of Community action in the Field of Health 2008-2013
Promotion of young people’s mental health through technology-enhanced personalization of care [PRO-YOUTH]
The general objective of PRO-YOUTH is the promotion of mental health of young people aged 15 to 25 through personalized stepped care integrating prevention, early diagnosis, immediate intervention and...
The general objective of PRO-YOUTH is the promotion of mental health of young people aged 15 to 25 through personalized stepped care integrating prevention, early diagnosis, immediate intervention and appropriate management of eating disorder (ED) related mental health problems. Specifically, the project aims at the improvement of young people`s quality of life, by reducing the number of individuals affected by ED and minimizing the burden and duration of suffering for those affected. Moreover, PRO-YOUTH focuses on reducing inequalities, reaching underserved populations, and de-stigmatising mental disorders by psychoeducation and peer support. Young people`s self-management skills are strengthened and they are encouraged to seek the best and most effective health care assistance. The inclusion of different settings, contexts, and stakeholders together with the respective capacity building will provide a knowledge base that better enables young people and their health care providers to adopt proven strategies to promote mental health and prevent mental illness.
Start date: 01/04/2011 - End date: 01/04/2014

Call: Promote Health (Hp-2010)
Topic: Impementation
First Programme of Community action in the field of public health (2003-2008)
National policies for EHR implementation in the European area: social and organizational issues [EHR-IMPLEMENT]
The general objective of EHR-IMPLEMENT is to collect, analyse and compare broad scale electronic health record (EHR) implementations among European countries and provide best practice, policy and stra...
The general objective of EHR-IMPLEMENT is to collect, analyse and compare broad scale electronic health record (EHR) implementations among European countries and provide best practice, policy and strategic recommendations to facilitate EHR implementation initiatives throughout Europe.
Start date: 01/05/2007 - End date: 01/05/2010

Call: Health Information (Hi 2006)
Topic: Impementation
First Programme of Community action in the field of public health (2003-2008)
Young and HIV: European network to arrange an innovative prevention campaign and to exchange good practices - experience in Europe" [SUNFLOWER]
SUNFLOWER project will generate, collect and disseminate good practices, information and data on HIV/AIDS prevention methods among young people that will be used by national administrations, professio...
SUNFLOWER project will generate, collect and disseminate good practices, information and data on HIV/AIDS prevention methods among young people that will be used by national administrations, professionals and other parties from New EU Member states that work in the field of HIV prevention.
Start date: 01/05/2008 - End date: 01/01/2011

Call: Health Determinants (Hd 2007)
Topic: Impementation