Palliative care / Projects

First Programme of Community action in the field of public health (2003-2008)
Electronic standard coding and mapping of services for long-term care [eDESDE-LTC]
eDESDE-LTC aims at developing an operational system for coding, mapping and comparing services for long-term care (LTC) across EU. The system will include
- standard classification of main types of ...
eDESDE-LTC aims at developing an operational system for coding, mapping and comparing services for long-term care (LTC) across EU. The system will include
- standard classification of main types of care for persons with LTC needs,
- an instrument for mapping and standard descriptions of services,
- a webpage,
- a training package.

Start date: 01/07/2008 - End date: 01/02/2011

Call: Health Information (Hi 2007)
Topic: Palliative care
First Programme of Community action in the field of public health (2003-2008)
Fighting Against Cancer Today [FACT]
FACT aims at ensuring that the best practice is shared across the EU and at closing the gap that exists in cancer prevention, diagnosis, treatment and care, and research between and within Member Stat...
FACT aims at ensuring that the best practice is shared across the EU and at closing the gap that exists in cancer prevention, diagnosis, treatment and care, and research between and within Member State. Its primary aim is to send a strong signal that immediate concerted action is needed to reduce cancer rates and improve cancer
outcomes. In addition, it will include and embrace extensive and existing knowledge, projects and initiatives on cancer. Numerous institutions, organisations and individuals will be given an opportunity to contribute to the project.
Start date: 01/08/2007 - End date: 01/08/2009

Call: Health Determinants (Hd 2006)
Topic: Palliative care
First Programme of Community action in the field of public health (2003-2008)
Defining best practices in palliative care in Europe [PPP]
In cooperation with institutes in seven European countries, an international study
will be undertaken in order to describe `best practice in palliative care` in Europe. Therefore, we
need to develop...
In cooperation with institutes in seven European countries, an international study
will be undertaken in order to describe `best practice in palliative care` in Europe. Therefore, we
need to develop indicators that measure best practice in palliative care.
Start date: 01/10/2007 - End date: 01/10/2010

Call: Health Information (Hi 2006)
Topic: Palliative care
Second Programme of Community action in the Field of Health 2008-2013
1st International Conference on Bridging Knowledge in Long Term Care and Support. Crossing Boundaries between Ageing & Disability [Bridging KAD]
1) To build bridges in the field of long-term care particularly in the areas of disability and ageing via the exchange of knowledge
2) To improve, generate and disseminate the knowledge base in long...
1) To build bridges in the field of long-term care particularly in the areas of disability and ageing via the exchange of knowledge
2) To improve, generate and disseminate the knowledge base in long-term care
3) To create a network of experts in the areas of bridging in long-term care which can facilitate knowledge sharing and dialogue
4) To promote and to give an award for best practice in bridging long-term care to a key experience or person
5) To produce a recommendation on “Bridging Experiences for Evidence Based Policy in Long-term Care in Europe” and to submit it to the EC and member states

Start date: 05/03/2009 - End date: 05/03/2010

Call: Generate And Disseminate Health Information And Knowledge (Hi-2008)
Topic: Palliative care
Second Programme of Community action in the Field of Health 2008-2013
Continuing Cancer Care [CCC]
Strategic objectives
1. To build public health capacity
2. To raise awareness, inform, initiate and/or continue to influence policy debates on five steps in the cancer patient`s journey in order to a...
Strategic objectives
1. To build public health capacity
2. To raise awareness, inform, initiate and/or continue to influence policy debates on five steps in the cancer patient`s journey in order to advance the cancer part of the 2010 work plan
3. To strengthen networks and contacts between European cancer leagues and the European Institutions
4. To create channels through which the presence and influence of Association of European Cancer Leagues at European policy making levels is increased in order to advocate for better patient support in legislation.

Each conference topic has its own purpose for being presented which fit in with the overall objectives of the conference of networking, exchanging information and capacity building. These thematic objectives will not be monitored separately but within the context of the strategic objectives.

Pyschosocial Screening
1. Development and implementation of psychosocial screening tools
2. Improvement of the accessibility of high quality psychosocial support for all cancer patients and their care givers/families
3. Inclusion of psychosocial aspects of cancer in medical guidelines and in the curriculum of all oncology health professionals
Palliative care
1. To address inequalities in palliative care concerning:
a. Access
b. Quality of care
c. Pain control
d. Economics
2. Capacity building for implementing standardised palliative care in Europe

Rehabiliation
1. Ensure that cancer rehabilitation is a part of national cancer control plans and EU (health) legislation
2. Prioritise data collection and research on rehabilitation to ensure the effectiveness of rehabilitation programmes
3. Ensure all cancer patients have a personalised cancer survivorship plan through cancer rehabilitation units/programmes at the hospitals and in the community

Access to Credit and Insurance
1. Raise awareness about life and health insurance and access to credit
2. Call for fair treatment of people with increased health risks due to cancer. We believe that:
a. Insurance companies should be objective i.e. base their calculations on appropriate data
b. People should have the right to independent re-evaluations
3. Identification of EU actions and players

Employment
Demonstrate ways to reduce the economic costs of cancer and minimise workforce loss via:
- Working with the 8 basic rights
- Focusing on how to get people back to work
- Working with trade unions/employers and other stakeholders


Start date: 07/09/2011 - End date: 07/09/2011

Call: Generate And Disseminate Health Information And Knowledge (Hi-2010)
Topic: Palliative care