The project builds upon the preliminary achievements of the B3 Action Group on Integrated Care of the European Innovation Partnership on Active and Healthy Ageing (EIP on AHA) that first developed the concept of the B3 Maturity Model. Through the activities of the EU Health Programme funded project SCIROCCO, the Model has been further refined and is supported by a validated online self-assessment tool for integrated care. The ambition of the SCIROCCO Exchange project is to maximise the value and impact of the Model and Tool. The purpose of this hub is to facilitate the process of “matching” the needs of the regions with existing evidence on integrated care, good practices, tools and guidelines and thus facilitate the learning and exchange of good practices. The project will deliver improved coding of available evidence on integrated care and make the learning readily available to potential adopters. The project also explores the readiness of local environment for the adoption of integrated care, using the SCIROCCO online self-assessment tool, in order to understand the local needs and the ground for the transition. This will serve as a basis to design a tailored capacity-building approach and personalised assistance to national and regional health and social care authorities. The project will capture the learning from the process of transferability and knowledge transfer in order to inform improvement planning for integrated care. Finally, the project will also be an opportunity to explore the potential expansion of the SCIROCCO Maturity Model and its online self-assessment tool for integrated care to other relevant areas of active and healthy ageing.
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ERN-RND is a network of 32 Healthcare Providers from 13 EU member states. ERN-RDN builds on existing expert centres and mature networks dedicated to rare neurological diseases (RND) as well as established rare disease infrastructures such as Orphanet, EURORDIS and RD-Connect. Through coordination and knowledge transfer, ERN-RND shall establish a patient-centred network to address the needs of patients with RND of all age groups, with or without a definite diagnosis, by implementing an infrastructure for diagnosis, evidence-based management, treatment and collection of patient data. The network will develop, disseminate, implement and supervise best practice guidelines and care pathways to optimize patient care and facilitate training and capacity building in the field. A special effort will be aimed to member states with less developed infrastructure for caring for RND patients, where no current partners are located, or with only affiliated or collaborative partners. ERN-RND will inform planning of European and national health care in RND, facilitating translation of research activities into clinical practice and the development of future therapies. Keeping in line with ERN-RND’s strategic objectives the seven most important operational targets for year 3-5 are:
• Role-out of CPMS in ERN-RND for disease group specific use cases
• Define responding strategies for disease groups specific most important care needs for RND in the EU
• Implement EQA scheme for genetic diagnosis of RND
• Together with the European Academy of Neurology put in place process for development of RND clinical practise guidelines
• Implement ERN-RND training program consisting of training workshops, fellowships and e-learning
• Demonstrate value of RND registries for trial-readiness
• Establish ERN-RND web-site as THE European RND disease knowledge hub

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