The project aims at developing strategies and mechanisms for exchange of information among people affected by rare diseases (RD), as well as at supporting for European Networks of Reference for RD in an effort to establish guidelines for best practice on treatment, and to share knowledge on RD, together with evaluation of performance. This objective will be pursued through the collection, analysis and presentation through EU conferences of relevant experiences and informed opinions on health policy themes from RD patients, with the support of health care professionals, at both national and EU levels.
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The project aims to develop standardized comparative survey methodology on heavy drinking, binge drinking (episodic heavy drinking), drunkenness, context of drinking, alcohol dependence and unrecorded consumption, as well as public support for alcohol policy measures, and to develop standardized methodology of cost-benefit analyses of alcohol policies to evaluate the economic impact of existing alcohol policies in the EU.
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EuroNeoStat II mission or strategic goal is that all Very Low Gestation (VLGA, gestation <32 wks) and Very Low Birth Weight (VLBW, birthweight <1501 g) infant born in Europe, receive the best possible health care no matter where born by preventing existing inequalities and that all Neonatal Units use the indicators developed, to assess the quality of care provided and implement strategies to improve outcome.
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