Projects / European Commission Data Programme DataBase http://ec.europa.eu/chafea/ Projects / European Commission Data Programme DataBase Fri, 30 Sep 2022 21:11:40 21SepCEST AP-HP_Porphyria_FY2011 http://persond.cc.cec.eu.int:8082/health/projects/20103209 Sat, 01 Jan 2011 00:00:00 0JanCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/20103209 Assistance Publique Hôpitaux de Paris http://persond.cc.cec.eu.int:8082/health/projects/20103201 Sat, 01 Jan 2011 00:00:00 0JanCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/20103201 European Surveillance of Congenital Anomalies http://persond.cc.cec.eu.int:8082/health/projects/20102204 Sat, 01 Jan 2011 00:00:00 0JanCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/20102204 An EU Rare Diseases Registry for Wolfram Syndrome, Alstrom Syndrome and Bardet Biedl Syndrome http://persond.cc.cec.eu.int:8082/health/projects/20101205 Sat, 01 Jan 2011 00:00:00 0JanCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/20101205 European registry and network for Intoxication type Metabolic Diseases http://persond.cc.cec.eu.int:8082/health/projects/20101201 Sat, 01 Jan 2011 00:00:00 0JanCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/20101201 European Porphyria Network: providing better healthcare for patients and their families http://persond.cc.cec.eu.int:8082/health/projects/20113205 Sun, 01 Jan 2012 00:00:00 0JanCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/20113205 The European Wilson's Disease Network http://persond.cc.cec.eu.int:8082/health/projects/20113203 Sun, 01 Jan 2012 00:00:00 0JanCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/20113203 UNEW_FY2013 http://persond.cc.cec.eu.int:8082/health/projects/20123307 Tue, 01 Jan 2013 00:00:00 0JanCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/20123307 EMSP_FY2013 http://persond.cc.cec.eu.int:8082/health/projects/20123302 Tue, 01 Jan 2013 00:00:00 0JanCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/20123302 NEW e-HEALTH SERVICES FOR THE EUROPEAN REFERENCE NETWORK ON RARE ANAEMIAS http://persond.cc.cec.eu.int:8082/health/projects/20121217 Tue, 01 Jan 2013 00:00:00 0JanCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/20121217 European monitoring of excess mortality for public health action http://persond.cc.cec.eu.int:8082/health/projects/2007201 Wed, 02 Jan 2008 00:00:00 0JanCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/2007201 European Registry of Quality Outcomes for Cataract and Refractive Surgery http://persond.cc.cec.eu.int:8082/health/projects/2007102 Thu, 03 Jan 2008 00:00:00 0JanCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/2007102 Establishment of an European Network of Rare Bleeding Disorders http://persond.cc.cec.eu.int:8082/health/projects/2006118 Thu, 04 Jan 2007 00:00:00 0JanCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/2006118 European Porphyria Network: providing better healthcare for patients and their families http://persond.cc.cec.eu.int:8082/health/projects/2006107 Thu, 04 Jan 2007 00:00:00 0JanCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/2006107 Joint Action on Monitoring Injuries in Europe http://persond.cc.cec.eu.int:8082/health/projects/20102205 Tue, 04 Jan 2011 00:00:00 0JanCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/20102205 Inherited NeuRoMetabolic Diseases INFORMATION NETWORK http://persond.cc.cec.eu.int:8082/health/projects/20121212 Fri, 04 Jan 2013 00:00:00 0JanCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/20121212 An EU rare diseases registry for Niemann-Pick Disease type A, B and C. http://persond.cc.cec.eu.int:8082/health/projects/20121201 Fri, 04 Jan 2013 00:00:00 0JanCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/20121201 European Framework for Evaluation of Organ Transplants http://persond.cc.cec.eu.int:8082/health/projects/20081101 Mon, 05 Jan 2009 00:00:00 0JanCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/20081101 Cross-Border Patient Registries Initiative http://persond.cc.cec.eu.int:8082/health/projects/20112302 Thu, 05 Jan 2012 00:00:00 0JanCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/20112302 A European Network of Centres of Reference for Dysmorphology http://persond.cc.cec.eu.int:8082/health/projects/2006122 Sat, 06 Jan 2007 00:00:00 0JanCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/2006122 The State of Reproductive Health and Fertility in the European Union http://persond.cc.cec.eu.int:8082/health/projects/2007110 Sun, 06 Jan 2008 00:00:00 0JanCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/2007110 EUROPEAN REFERENCE NETWORK OF EXPERT CENTRES IN RARE ANAEMIAS http://persond.cc.cec.eu.int:8082/health/projects/20081210 Tue, 06 Jan 2009 00:00:00 0JanCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/20081210 European network for central hypoventilation syndromes : Optimizing health care to patients http://persond.cc.cec.eu.int:8082/health/projects/20081206 Tue, 06 Jan 2009 00:00:00 0JanCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/20081206 European Health and Life Expectancy Information System (EHLEIS) http://persond.cc.cec.eu.int:8082/health/projects/2006109 Sun, 07 Jan 2007 00:00:00 0JanCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/2006109 Better Statistics for Better Health for Pregnant Women and Their Babies: European Health Reports http://persond.cc.cec.eu.int:8082/health/projects/2007114 Mon, 07 Jan 2008 00:00:00 0JanCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/2007114 European Register for Multiple Sclerosis - A tool to assess, compare and enhance the status of People with MS throughout the EU http://persond.cc.cec.eu.int:8082/health/projects/20101213 Fri, 07 Jan 2011 00:00:00 0JanCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/20101213 European Register on Cushing’s Syndrome http://persond.cc.cec.eu.int:8082/health/projects/2006117 Tue, 09 Jan 2007 00:00:00 0JanCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/2006117 European Nephrology Quality Improvement Network http://persond.cc.cec.eu.int:8082/health/projects/2006114 Tue, 09 Jan 2007 00:00:00 0JanCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/2006114 EUROCAT: Surveillance of Congenital Anomalies in Europe http://persond.cc.cec.eu.int:8082/health/projects/2006103 Tue, 09 Jan 2007 00:00:00 0JanCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/2006103 EUROCHIP-III "Common Actions" http://persond.cc.cec.eu.int:8082/health/projects/2007121 Wed, 09 Jan 2008 00:00:00 0JanCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/2007121 A reference network for Langerhans cell histiocytosis and associated syndrome in EU http://persond.cc.cec.eu.int:8082/health/projects/2007120 Wed, 09 Jan 2008 00:00:00 0JanCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/2007120 EUropean Best Information through Regional Outcomes in Diabetes http://persond.cc.cec.eu.int:8082/health/projects/2007115 Wed, 09 Jan 2008 00:00:00 0JanCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/2007115 European Surgical Registry for Rare Endocrine Tumours http://persond.cc.cec.eu.int:8082/health/projects/20121206 Wed, 09 Jan 2013 00:00:00 0JanCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/20121206 European Haemophilia Safety Surveillance System http://persond.cc.cec.eu.int:8082/health/projects/2007107 Thu, 10 Jan 2008 00:00:00 0JanCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/2007107 Dissemination and Implementation of the Standards of Care for Duchenne Muscular Dystrophy in Europe (including Eastern countries) http://persond.cc.cec.eu.int:8082/health/projects/20091205 Sat, 10 Jan 2009 00:00:00 0JanCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/20091205 Expanded European Information System to Monitor Short and Long Term outcomes and Improve Quality of Care and Safety for Very-Low-B http://persond.cc.cec.eu.int:8082/health/projects/20081311 Sun, 11 Jan 2009 00:00:00 0JanCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/20081311 Multiple Sclerosis - the information Dividend http://persond.cc.cec.eu.int:8082/health/projects/2006104 Thu, 01 Feb 2007 00:00:00 0FebCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/2006104 European network and registry for homocysinurias and methylation defects http://persond.cc.cec.eu.int:8082/health/projects/20121202 Thu, 01 Jan 1970 01:00:00 1JanCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/20121202 Indicators for monitoring COPD and asthma in the EU http://persond.cc.cec.eu.int:8082/health/projects/2005121 Thu, 01 Jan 1970 01:00:00 1JanCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/2005121 Building Consensus and Synergies for the EU Registration of Rare Disease Patients http://persond.cc.cec.eu.int:8082/health/projects/20101202 Thu, 01 Jan 1970 01:00:00 1JanCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/20101202 European Conference on Immunisation Information Systems http://persond.cc.cec.eu.int:8082/health/projects/20094101 Thu, 01 Jan 1970 01:00:00 1JanCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/20094101 European registry of patients with McArdle disease and very rare muscle glycogenolytic disorders (MGD) with exercise intolerance as the major symptom (PR-MDMGD) http://persond.cc.cec.eu.int:8082/health/projects/20121214 Thu, 01 Jan 1970 01:00:00 1JanCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/20121214 European Network of Reference for Rare Pediatric Neurological Diseases http://persond.cc.cec.eu.int:8082/health/projects/2007122 Thu, 01 Jan 1970 01:00:00 1JanCET European Commission http://persond.cc.cec.eu.int:8082/health/projects/2007122