Benchmarking / Projects

3rd Health Programme (2014-2020)
ERKNet Registry for Rare Kidney Diseases [ERK-REG]
Designed to meet the Third Health Programme objective to facilitate access to better and safer healthcare for EU citizens, the ERKNet Registry project aims to establish an online platform for the coll...
Designed to meet the Third Health Programme objective to facilitate access to better and safer healthcare for EU citizens, the ERKNet Registry project aims to establish an online platform for the collection of information relevant to patient health and clinical research within the framework of the European Rare Kidney Disease Reference Network (ERKNet).
This will be accomplished by the construction and implementation of a single core registry encompassing all rare kidney diseases in pediatric and adult patients.
The ERKNet Registry will collect at annual intervals (1) a common data set providing basic information about clinical, histopathological and genetic diagnosis, patient status, current kidney function and treatment modality and available biospecimens, and (2) a selected disease-specific set of key performance and outcome indicators. The latter will be defined by the ERKNet workgroups in a structured consensus-building process involving evidence-based guideline review and an iterative Delphi surveys among internal and external experts.
The Registry will contain an automated statistics and benchmarking functionality to allow continuous monitoring and benchmarking of treatment quality, guideline adherence and patient outcomes.
Existing disease- and treatment specific registries used by a major fraction of ERKNet members will be linked to the ERKNet Core Registry to allow data transmission and avoid the need of double entries. A stringent data protection policy will be applied in full compliance with the EU directive and regulation as well as national regulations on patient privacy and data protection, including central peudonymisation with separate storage of medical and patient identifying information.
In summary, we are proposing an innovative Web-based registry solution with a patient-oriented focus on continuous healthcare quality inmprovement by automated performance monitoring and Network wide benchmarking.
Start date: 01/01/2018 - End date: 31/12/2020

Call: Rare diseases - support for New Registries
Topic: Benchmarking
3rd Health Programme (2014-2020)
SCALING INTEGRATED CARE IN CONTEXT [SCIROCCO]
Grounded in the extensive experience of the European Innovation Partnership on Active and Healthy Ageing (EIP on AHA), SCIROCCO aims to provide a validated and tested tool that facilitates the success...
Grounded in the extensive experience of the European Innovation Partnership on Active and Healthy Ageing (EIP on AHA), SCIROCCO aims to provide a validated and tested tool that facilitates the successful scaling-up and transfer of good practices in integrated care across European regions. SCIROCCO will specifically focus on successful local interventions (good practices) that have demonstrated significant benefits to citizens, communities and service providers and that feature moving towards community-based, integrated health and social care service models.SCIROCCO will deliver an assessment of the contextual requirements necessary for the scale-up of these interventions and the capacity of regions to adopt them. SCIROCCO will also compare the readiness of five European regions to adopt good practices in the provision of integrated care, to demonstrate the effectiveness of the tool in practice.SCIROCCO explores how matching regions that have complementary strengths and weaknesses can deliver two major benefits: a strong basis for successful twinning and coaching that facilitates shared learning and effective knowledge transfer; and practical support for the scaling-up of good practices that promote active and healthy ageing and participation in the community.Finally, SCIROCCO captures the lessons learned from twinning, coaching and knowledge transfer activities as a significant contribution to supporting the broader implementation and scaling-up of local integrated care interventions in Europe, in line with the European Commission's 'European Scaling-up Strategy in Active & Healthy Ageing'.
Start date: 01/04/2016 - End date: 30/11/2018

Call: Call for Proposals for Projects 2015
Topic: Benchmarking