Research / Projects

3rd Health Programme (2014-2020)
THALassaemia In Action 2018 [THALIA2018]
Thalassaemia, a previously fatal childhood genetic disease, can today be effectively prevented and appropriately treated, as a result of medical and scientific advances in the last three decades. Howe...
Thalassaemia, a previously fatal childhood genetic disease, can today be effectively prevented and appropriately treated, as a result of medical and scientific advances in the last three decades. However, thalassaemia’s prioritisation on national health agendas and the development of national plans for its effective control in the EU has been hampered by the many challenges involved, mainly related to its rarity and migration.

THALassaemia In Action 2018 (THALIA2018) focuses on Europe, targeting patients with thalassaemia and other haemoglobinopathies, healthcare professionals and policymakers and aims to attain four general objectives, based on TIF’s main pillars of activities:

1. Continue and strengthen the education of patients/parents and healthcare professionals, as well as the patients’ capacity, competency and networking within and across countries and regions of Europe. This is to be achieved via the development of e-learning tools and the launching of capacity building courses and training seminars.

2. Raise awareness on thalassaemia and the importance of optimal care amongst the public at large, as well as among THALIA target groups at national and European level. This will be attained using an array of online tools, activities and publications.

3. Prioritise haemoglobin disorders and their control (prevention and management) at European level. This will be accomplished by establishing and training national patients’ associations in EU priority countries, creating an EU Electronic Health Record and entering into policy dialogue with policymakers at national and European level.

4. Support research programmes and studies focused on the clinical management of Thalassaemia. This is to be achieved via the publication of guidelines on the clinical management of Thalassaemia, participating in scientific conferences and providing medical specialists in priority countries with fellowships.

Knowledge is our power.
Start date: 01/01/2018 - End date: 31/12/2018

Call: Financial contribution to the functioning of non-governmental bodies (Operating grants)
Topic: Research
3rd Health Programme (2014-2020)
European Heart Network - Cardiovascular Health at the Heart of EU Policies [EHN SGA 2018]
Every action the European Heart Network (EHN) undertakes aims to achieve its mission: to prevent and reduce cardiovascular disease (CVD).

To establish its operational objectives and construct its wo...
Every action the European Heart Network (EHN) undertakes aims to achieve its mission: to prevent and reduce cardiovascular disease (CVD).

To establish its operational objectives and construct its work programme for 2018, EHN has scanned the EU policy horizon and consulted widely with its members.

EU policy areas upon which we will act include sustainable development, common agriculture policy and trade. We aim to inject consideration of CVD/chronic diseases into these areas to help achieve SDG goal 3.4 and the WHA 25x25 targets.

A major focus in 2018 is implementation of EHN’s policy recommendations contained in its paper “Transforming European food and drink policies for cardiovascular health”.

EHN is a closely-knit member organisation and has, consequently, planned a series of workshops and seminars to strengthen its members' capacities and provide knowledge-exchange opportunities for them. EHN will also strengthen its own operations and continue to ensure good governance.

EHN’s near-to-final 2019-2023 strategy encompasses three pillars (general objectives): I-prevent avoidable CVD; II-strengthen the support for people with CVD; III-reinforce CVD research. These pillars are supported by horizontal objectives and our 2018 work programme includes, notably, an operational objective to ensure a framework of strong cooperation with institutional as well as non-governmental, like-minded organisations working to promote health and reduce risk factors.

In conclusion, we believe that the 10 operational objectives and activities that we have selected for 2018 will contribute to achieve the general and specific objectives set out in our Framework Programme Application of June 2017. We believe that, collectively and albeit in the longer term, they will help address the large inequalities due to CVD in the EU and thus provide substantial EU added value.

Start date: 01/01/2018 - End date: 31/12/2018

Call: Financial contribution to the functioning of non-governmental bodies (Operating grants)
Topic: Research
3rd Health Programme (2014-2020)
THALassaemia In Action 2019 [THALIA2019]
Thalassaemia, a previously fatal childhood genetic disease, can today be effectively prevented and appropriately treated, as a result of medical and scientific advances in the last three decades. Howe...
Thalassaemia, a previously fatal childhood genetic disease, can today be effectively prevented and appropriately treated, as a result of medical and scientific advances in the last three decades. However, thalassaemia’s prioritisation on national health agendas and the development of national plans for its effective control in the EU has been hampered by the many challenges involved, mainly related to its rarity and migration.

THALassaemia In Action 2019 (THALIA2019) focuses on Europe, targeting patients with thalassaemia and other haemoglobinopathies, healthcare professionals and policymakers and aims to attain four general objectives, based on TIF’s main pillars of activities:

1. Continue and strengthen the education of patients/parents and healthcare professionals, as well as the patients’ capacity, competency and networking within and across countries and regions of Europe. This is to be achieved via the development of e-learning tools and the launching of capacity building courses and training seminars.

2. Raise awareness on thalassaemia and the importance of optimal care amongst the public at large, as well as among THALIA target groups at national and European level. This will be attained using an array of online tools, activities and publications.

3. Prioritise haemoglobin disorders and their control (prevention and management) at European level. This will be accomplished by establishing and training national patients’ associations in EU priority countries, creating an EU Electronic Health Record and entering into policy dialogue with policymakers at national and European level.

4. Support research programmes and studies focused on the clinical management of Thalassaemia. This is to be achieved via the publication of guidelines on the clinical management of Thalassaemia, participating in scientific conferences and providing fellowships to medical specialists.

Knowledge is our power.
Start date: 01/01/2019 - End date: 31/12/2019

Call: Financial contribution to the functioning of non-governmental bodies (Operating grants)
Topic: Research
3rd Health Programme (2014-2020)
Preventing cancer and chronic diseases through smoking prevention: Proposal for a Specific Grant Agreement for the Smoke Free Partnership Coalition annual work programme 2019 [SFP SGA 2019]
The overarching goal of the SFP Coalition multiannual work programme between 2018 and 2021 is to prevent cancer and chronic diseases through smoking prevention at EU and national level with a special ...
The overarching goal of the SFP Coalition multiannual work programme between 2018 and 2021 is to prevent cancer and chronic diseases through smoking prevention at EU and national level with a special focus on young people and health in all policies. The work plan for 2019 will support this goal by continuing advocacy campaigns on tobacco control research and tobacco taxation; by building on the results of the global meetings on the FCTC and Illicit Trade Protocol and the UN NCD process, by continuing to engage its Coalition members at EU level, and by supporting national campaigns and capacity building for effective civil dialogue and tobacco control advocacy. In 2019 SFP will also focus on awareness raising on the FCTC, the Illicit Trade Protocol, SDG 3 and targets 3.4 and 3.A in the context of the European elections.
Start date: 01/01/2019 - End date: 31/12/2019

Call: Financial contribution to the functioning of non-governmental bodies (Operating grants)
Topic: Research
3rd Health Programme (2014-2020)
THALassaemia In Action 2020 [THALIA2020]
Thalassaemia, a previously fatal childhood genetic disease, can today be effectively prevented and appropriately treated, as a result of medical and scientific advances in the last three decades. Howe...
Thalassaemia, a previously fatal childhood genetic disease, can today be effectively prevented and appropriately treated, as a result of medical and scientific advances in the last three decades. However, thalassaemia’s prioritisation on national health agendas and the development of national plans for its effective control in the EU has been hampered by the many challenges involved, mainly related to its rarity and migration.

THALassaemia In Action 2020 (THALIA2020) focuses on Europe, targeting patients with thalassaemia and other haemoglobinopathies, healthcare professionals and policymakers and aims to attain four general objectives, based on TIF’s main pillars of activities:

1. Continue and strengthen the education of patients/parents and healthcare professionals, as well as the patients’ capacity, competency and networking within and across countries and regions of Europe. This is to be achieved via the development of e-learning tools and the launching of capacity building courses and training seminars.

2. Raise awareness on thalassaemia and the importance of optimal care amongst the public at large, as well as among THALIA target groups at national and European level. This will be attained using an array of online tools, activities and publications.

3. Prioritise haemoglobin disorders and their control (prevention and management) at European level. This will be accomplished by establishing and training national patients’ associations in EU priority countries, creating an EU Electronic Health Record and entering into policy dialogue with policymakers at national and European level.

4. Support research programmes and studies focused on the clinical management of Thalassaemia. This is to be achieved via the publication of guidelines on the clinical management of Thalassaemia, participating in scientific conferences and providing fellowships to medical specialists.

Knowledge is our power. Unity is our strength.
Start date: 01/01/2020 - End date: 31/12/2020

Call: Financial Contribution to the Functioning of Non-Governmental Bodies - Invitation to submit proposals for Specific Operating Grant Agreements (SGA)
Topic: Research