Networking / Projects

3rd Health Programme (2014-2020)
Proposal for Operating Grant Framework Partnership Agreement 2015-2017 for the European Organisation for Rare Diseases (EURORDIS) [EURORDIS FY2015-2017]
The European Organisation for Rare Diseases – EURORDIS – represents the voice of an estimated 30 million people living with a rare disease in the EU, and their families. The proposal submitted for...
The European Organisation for Rare Diseases – EURORDIS – represents the voice of an estimated 30 million people living with a rare disease in the EU, and their families. The proposal submitted for Operating Grant FPA 2015-2017 is structured around four main objectives of utmost importance for the European rare disease patients’ community:1. To consolidate the Rare Disease patients’ community and strengthen the RDs patients’ voice;2. To actively engage rare disease patients’ representatives into the effective implementation and monitoring of relevant EU legislation / strategies and support their integration at national level;3. To build capacities and empower rare disease patients advocates, members and volunteers;4. To sustain human, financial and organisational resources. EURORDIS achieves these objectives through the following activities: collecting data as well as gathering, disseminating and sharing information; support capacity-building to empower patients’ advocates; providing patients, families, carers, decision-makers and other stakeholders with relevant expertise to inform policy-making; generating EU added-value and support Member States efforts; promoting translational research towards therapeutic intervention for patients; serving as a relay of two-ways information flow between policy makers and rare disease patient groups; promoting access to high quality and safe healthcare services for rare disease patients throughout the EU. Through these activities, EURORDIS will contribute to the implementation of the priorities of the Third Public Health Programme which are to complement, add value and support national policies and strategies implemented by Member States to improve health, reduce health inequalities, support health capacity-building, generate and disseminate health information, contribute to innovative, efficient and sustainable health systems, support cross border healthcare in order to facilitate access to better and safer healthcare.
Start date: 01/01/2015 - End date: 31/12/2015

Call: Specific Grant Agreements for 2015 under the Framework Partnership Agreement for Operating Grants 2015-2017
Topic: Networking
3rd Health Programme (2014-2020)
ENSP - The Network - Paving the way for a tobacco free Europe. [ENSP FY 2018]
Tobacco consumption is the major single cause for premature deaths in the European Union (EU).
Special Eurobarometer 458/2017 indicates that over a quarter (26%) of European citizens are currently sm...
Tobacco consumption is the major single cause for premature deaths in the European Union (EU).
Special Eurobarometer 458/2017 indicates that over a quarter (26%) of European citizens are currently smoking, and an increase in consumption amongst young people aged 15-24 is observed since 2014 (from 24% to 29%). Smoking within the EU is estimated to cause 700.000 deaths annually, half of which are among 35–69-year-olds. As smoking is responsible for half the difference in deaths across socio-economic groups, tobacco control has a major role to play in reducing health and social inequalities.
ENSP plays a major role in the EU to prevent the tobacco industry from biasing and slowing down the tobacco control community effort. Key objectives for 2018 are:
O.1 - To assist and support the European Institutions with the complete implementation of tobacco control legislation, through the effective transposition and enforcement of the TPD (2014/40/EU) and the implementation of the WHO FCTC - through the provision of solid scientific evidence and awareness raising at the EU level.
O. 2 -To strengthen advocacy capacity at EU MS National level, and more particularly to empower Civil Society organisations, Policy Makers, academics, experts and all other relevant stakeholders through the provision of science based evidence, increased health literacy, promotion of healthy lifestyle decisions, disease prevention and improving access to tobacco dependence treatment, through a wide range of channels and innovative tools
O. 3 - To reduce health inequalities due to tobacco use at the micro level, through focusing on the 3rd Health Programme thematic priority areas and tobacco use, and through the engagement of youth in tobacco control activities
O.4 - To enhance the sustainability of the actions performed through the Operating Grant so as to ensure the strategic long term development and return on EU investment in the post Operating Grant period

Start date: 01/01/2018 - End date: 31/12/2018

Call: Financial contribution to the functioning of non-governmental bodies (Operating grants)
Topic: Networking
3rd Health Programme (2014-2020)
Saving lives by ending tobacco in Europe - from grassroots networking at EU countries level to the partnership with the Presidency of the Council of the EU [ENSP FY 2019]
Tobacco consumption is the major single cause for premature deaths in the European Union (EU). Special Eurobarometer 458/2017 indicates that over a quarter (26%) of European citizens are currently smo...
Tobacco consumption is the major single cause for premature deaths in the European Union (EU). Special Eurobarometer 458/2017 indicates that over a quarter (26%) of European citizens are currently smoking, and an increase in consumption amongst young people aged 15-24 is observed since 2014 (from 24% to 29%). Smoking within the EU is estimated to cause 700.000 deaths annually, half of which are among 35–69-year-olds. As smoking is responsible for half the difference in deaths across socio-economic groups, tobacco control has a major role to play in reducing health and social inequalities.

ENSP plays a major role in the EU to prevent the tobacco industry from biasing and slowing down the tobacco control community effort. Key objectives for 2019:

O.1 - To assist and support the European Institutions with the complete implementation of tobacco control legislation, through the effective transposition and enforcement of the TPD (2014/40/EU) and the implementation of the WHO FCTC - through the provision of solid scientific evidence and awareness raising at the EU level.

O. 2 - To strengthen advocacy capacity at EU MS National level, and more particularly to empower Civil Society organisations, policy makers, academics, experts and all other relevant stakeholders through the provision of science-based evidence, increased health literacy, promotion of healthy lifestyle decisions, disease prevention and improving access to tobacco dependence treatment, through a wide range of channels and innovative tools.

O. 3 - To reduce health inequalities due to tobacco use at the micro level, through focusing on the 3rd Health Programme thematic priority areas and tobacco use, and through the engagement of youth in tobacco control activities.

O.4 - To enhance the sustainability of the actions performed through the Operating Grant so as to ensure the strategic long-term development and return on EU investment in the post Operating Grant period.


Start date: 01/01/2019 - End date: 31/12/2019

Call: Financial contribution to the functioning of non-governmental bodies (Operating grants)
Topic: Networking
3rd Health Programme (2014-2020)
Alzheimer Europe 2019 [AE2019]
In 2019, AE will:
• Ensure that the voices of people with dementia are duly included in all operating grant activities by involving its European Working Group of People with Dementia, organise at le...
In 2019, AE will:
• Ensure that the voices of people with dementia are duly included in all operating grant activities by involving its European Working Group of People with Dementia, organise at least three meetings of the group and collaborate closely with the 2nd Joint Action on Dementia and develop recommendations on dementia-friendly and dementia-inclusive initiatives
• Collect information on epidemiological studies carried out in European countries looking at the incidence and prevalence of MCI, AD and dementia, carry out a meta-analysis, calculate the estimated numbers of people with dementia in all Member States of the European Union c and publish a report of these findings in the 2019 edition of the Alzheimer Europe Yearbook.
• Identify the issues faced by people with dementia when participating in research as the priority of its European Dementia Ethics Network and carry out an extensive literature review on this subject, develop recommendations to promote a human rights based approach to the involvement of people with dementia in research and publish the recommendations with the findings of the literature review in a report.
• Continue with the development of its European Dementia Observatory, organise a conference in The Hague, Netherlands under the motto “Making valuable connections” from 22-25 October 2019 with the participation of at least 750 participants from 30 European countries and carry out an invetory of European and national treatment and management guidelines for dementia.
• Carry out a mapping exercise of its national organisations to understand their membership, staffing, funding as well as their activities and services and bring together representatives of the national Alzheimer associations for three networking meetings of the Alzheimer’s Association Academy.
Start date: 01/01/2019 - End date: 31/12/2019

Call: Financial contribution to the functioning of non-governmental bodies (Operating grants)
Topic: Networking
3rd Health Programme (2014-2020)
Efficient response to highly dangerous and emerging pathogens at EU level [EMERGE]
The human population is confronted with emerging and re-emerging infectious pathogens that can cause serious cross-border outbreaks. A recent example is the Ebola outbreak requiring strong diagnostic,...
The human population is confronted with emerging and re-emerging infectious pathogens that can cause serious cross-border outbreaks. A recent example is the Ebola outbreak requiring strong diagnostic, clinical, and public health measures in Europe and abroad in order to get this incident under control. The JA EMERGE is in compliance with the European policy (Decision No 1082/2013/EU) where the need for an efficient, rapid and coordinated response to high threat pathogens is defined. The JA EMERGE comprises a European network with more then 40 diagnostic laboratories focused on risk group 3 bacteria and risk groups 3 and 4 viruses. It will act in a so-called inter-epidemic mode (IEM) which can be activated and switched into an outbreak response mode (ORM) on request by the Health Security Committee in order to direct all activities to the outbreak management. A number of other laboratory networks, institutions and agencies are contributing to the management of cross-border infectious outbreaks. EMERGE will provide a platform for establishment and consolidation of a common, coordinated and effective response to infectious disease outbreaks at EU level and abroad (WP4). State of the art and new diagnostic methods for high threat pathogens, including in-house and commercial kits, will be evaluated for their applicability and recommended in outbreak situations when suitable (WP5). External quality assurance exercises will ensure best approaches for laboratory responsiveness in outbreak situations (WP6). These activities must be supported by an appropriate training to share best practices of diagnostics and bio-risk management (WP7). In conclusion, the general objective will be to ensure efficient response to serious emergent and re-emergent cross-border events by reinforcing the existing EU network of BSL 3 and BSL 4 laboratories which are already active in the field of identification of dangerous bacterial and viral human pathogens.
Start date: 01/06/2015 - End date: 31/03/2019

Call: Grants for actions co-financed with Member State authorities 2014 (Joint Actions)
Topic: Networking