Filter on [TOPICS=Developing strategies and mechanisms for preventing, exchanging information on and responding to non-communicable disease threats, including gender specific health threats and rare diseases]

First Programme of Community action in the field of public health (2003-2008)
EUropean Core Indicators in Diabetes Mellitus [EUCID]
The European Core Indicators for Diabetes mellitus (EUCID) project sets up a stable organization to collect and analyse data on health status and care delivery for diabetes mellitus in the EU countrie...
The European Core Indicators for Diabetes mellitus (EUCID) project sets up a stable organization to collect and analyse data on health status and care delivery for diabetes mellitus in the EU countries and the future member states in order to promote the planning for a good diabetes health status and diabetes care organization in the different countries. The first objective is to show the feasibility of the data collection. The second objective is to create a stable platform for the data collection. The third objective is to create a reporting platform for the indicators using the existing structure of the EC. These objectives are to be reported in a paper with the agreement of the different participating partners after the start up meeting and a final report showing the collected indicators, with a proposal for collection of data in the future, using a stable paper and electronic platform for reporting.
Start date: 01/01/2006 - End date: 01/01/2008
Call: Health Information (Hi 2005)
First Programme of Community action in the field of public health (2003-2008)
European Collaboration on Dementia [EuroCoDe]
The aim of the project is to develop a European network of all the players active in the area of dementia to jointly develop consensual indicators and to develop an ongoing dialogue between these acto...
The aim of the project is to develop a European network of all the players active in the area of dementia to jointly develop consensual indicators and to develop an ongoing dialogue between these actors to identify ways of developing synergies and a closer collaboration on a European level. For the definition of these indicators, the network to bring together a number of established pan-European organisations, European projects and informal collaborations, such as the Cochrane Dementia and Cognitive Improvement Group, the European Alzheimer`s Disease Consortium, the European Association of Geriatric Psychiatry, the Dementia Panel of the European Federation of Neurological Societies, the INTERDEM (Early detection and timely intervention in dementia) group, the International Association of Gerontology (European Region) and the North Sea Dementia Research Group. Recognising the global dimension of dementia and the need to extend its collaborative effort, Alzheimer Europe would furthermore like to actively involve Alzheimer`s disease International. This network would respond to the objectives of the Community Action Programme concerning the creation of a sustainable health monitoring and information system for Alzheimer`s disease and other forms of dementia. Particular attention would be paid to the development of information and the definition of indicators relating to the prevalence, diagnosis, treatment and management of Alzheimer`s disease and related disorders, as well as the risk factors and potential risk reduction or prevention strategies for this group of diseases. Finally, the socio-economic impact of dementia would be studied, as well as the social support provided by Member States to people with dementia and their carers.
Start date: 01/01/2006 - End date: 01/01/2009
Call: Health Information (Hi 2005)
First Programme of Community action in the field of public health (2003-2008)
European Myasthenia Gravis Network [-]
Myasthenia gravis (MG) is a disabling chronic neuromuscular disease affecting mostly females. There is a need for combining the efforts to improve the knowledge on this disease for the following reaso...
Myasthenia gravis (MG) is a disabling chronic neuromuscular disease affecting mostly females. There is a need for combining the efforts to improve the knowledge on this disease for the following reasons: 1. MG is a rare disease (prevalence about 10/100 000); 2. it is heterogeneous; 3. it could be life-threatening, when the respiratory muscles are affected; 4. the diagnosis is not always easy to make; 5. the clinical criterion and therapeutic approaches are different among the European countries; 6. there are aspects in the pathogenesis of the disease that are not yet clear; 7. there is no cure for this disease; 8. many of the drugs used for the treatment of MG have severe side-effects 9. some pharmaceutical molecules, such as anaesthesia agents are life-threatening for the patients.Our main objectives are: 1. To improve knowledge and information on the different forms of MG; 2. To improve standardisation of data collection; 3. To promote education and training, namely for the integration of new member states, 4. To identify important health indicators for MG; 5. To collect data and perform epidemiological studies at European level in order to improve the classification of MG disease` subtypes.
Start date: 01/01/2006 - End date: 01/01/2009
Call: Health Information (Hi 2005)