3rd Health Programme (2014-2020)
EpiCARE - a European Reference Network for rare and complex epilepsies [ERN EPICARE]
ERN EpiCARE is a network of 28 centres with expertise in the rare and complex epilepsies across 13 countries, developed to enhance diagnosis and ultimate management of these diseases. Complex epilepsi...
ERN EpiCARE is a network of 28 centres with expertise in the rare and complex epilepsies across 13 countries, developed to enhance diagnosis and ultimate management of these diseases. Complex epilepsies are those requiring multidisciplinary management through a care pathway or for comorbidity, with or without known aetiology, for example the surgically treatable epilepsies requiring a high level of multidisciplinary expertise and diagnostic resource (including video-EEG analysis, functional and/or structural neuroimaging). Delivery of such expertise can be enhanced through the use of e-tools, minimising the need for patients to travel. EpiCARE activities over the third, fourth and fifth years will be targeted at consolidating and further developing the EpiCARE network. EpiCARE aims at improving accessibility of detailed diagnostics to individuals of all ages with rare and complex epilepsies across Europe, including clinical evaluation and investigation. A care pathway for patients’ referral will be established throughout Europe, and further linkage with national health care networks will be coordinated. Online tools to aid the diagnosis of patients will be established. The development of treatment protocols and the monitoring of standardised outcomes of rare and complex epilepsies will be continued. Awareness and accessibility to protocols for physicians and individuals with rare and complex epilepsies across Europe for treatment will be further improved. There will be a further focus on training and education opportunities. We will also enhance the opportunities for building registries, and collaborative research for the benefit of individuals with rare and complex epilepsies across Europe.
Start date: 05/03/2019 - End date: 04/03/2022
Call: Multiannual Grant Agreements for European Reference Networks