Filter on [TOPICS=ERN Specific Grant Agreements 2019 - 2021]

3rd Health Programme (2014-2020)
European Reference Network on Rare Connective Tissue and Musculoskeletal Diseases [ERN ReCONNET]
The ERN ReCONNET 3-year Work Plan will set the stage for crucial achievements in the field of rare ad complex connective tissue diseases (rCTDs), allowing the Network to address its main commitment: t...
The ERN ReCONNET 3-year Work Plan will set the stage for crucial achievements in the field of rare ad complex connective tissue diseases (rCTDs), allowing the Network to address its main commitment: the benefit of patients affected by rCTDs.
As the aim of the 3-year program is to establish, coordinate and manage patients and HCPs communities and to pool knowledge and expertise across the EU, all the target groups will participate in all the activities planned. Specifically, the main target groups are represented by: patients, caregivers and families, HCP members, healthcare professionals, scientific societies.
The main activities that will be carried out are related to the coordination and management, empowerment and engagement of patients, families and caregivers, sharing of best practice, training and e-learning, research and innovation knowledge, dissemination and networking and sustainability.
The expected results of the activities of the next three years will be represented by the availability of specific tools aimed at harmonizing the clinical and economical approach to rCTDs and at creating minimum standards of healthcare services essential for the management of rCTDs across Europe and providing a crucial impact on the lives of more than 500.000 people affected by rCTDs.

Start date: 01/03/2019 - End date: 28/02/2022

Call: Multiannual Grant Agreements for European Reference Networks
3rd Health Programme (2014-2020)
3rd to 5th annual work program ERN TransplantChild [ERN TransplantChild]
3rd - 5th Annual Work Program for the ERN TransplantChild - Transplantation in Children, both Solid Organ Transplantation
and HSCT
Description of activities planned for the developement by the coordi...
3rd - 5th Annual Work Program for the ERN TransplantChild - Transplantation in Children, both Solid Organ Transplantation
and HSCT
Description of activities planned for the developement by the coordination of the third to fifth year of the ERN TransplantChild. 18 Health Care Providers from 11 different European countries
The general objectives are:
A. The identification of key aspects for the complete development of the Network and the development of actions for the joint achievement of the Network objectives:
B. The support and coordination of the Network activities.

The outputs we plan to obtain are related to report and analysis of key aspects related to paediatric transplantation, with a great impact in patients, families and professionals involved in the care of this patients.
Start date: 01/03/2019 - End date: 28/02/2022

Call: Multiannual Grant Agreements for European Reference Networks
3rd Health Programme (2014-2020)
MetabERN 3 years plan [MetabERN plan]
MetabERN is the first pan-European metabolic network that aims to facilitate access to the best available care for patients with rare inherited metabolic diseases (IMDs).
MetabERN represents today 69...
MetabERN is the first pan-European metabolic network that aims to facilitate access to the best available care for patients with rare inherited metabolic diseases (IMDs).
MetabERN represents today 69 founding Healthcare Providers (HCPs) from 18 EU Member States and 44 patient organisations (POs), and is endorsed by the Society for the Inborn Errors of Metabolism (SSIEM).
In line with the objectives and services defined in the proposal for a Framework Partnership Agreement, MetabERN aims to continue optimising the programmes centred on high-quality patient care. In particular MetabERN will: 1) strengthen the collaboration between participating HCPs and patients; 2) increase awareness of hereditary metabolic diseases in relevant communities; 3) develop dedicated educational and training programmes to address the identified HCPs’ and patients’ needs; 4) develop guidelines and clinical pathway recommendations on IMDs; 5) optimise the use of the Clinical Patient Management System (CPMS) and other service platforms to advance cross border collaboration for optimal diagnosis and treatment of rare IMDs; 6) analyse the state-of-play in IMD diagnosis and care; 7) ensure systematic involvement of patient representatives in MetabERN activities, and 8) put in place an efficient monitoring system for quality assurance of the overall execution of the three-year plan. To demonstrate the crucial importance of patient involvement and participation, a dedicated work package has been included in the work plan.
Start date: 01/03/2019 - End date: 28/02/2022
Call: Multiannual Grant Agreements for European Reference Networks