Download: PDF RTF XML Booklet: Review (0) Retrieve Add item
European Reference Network for rare respiratory diseases (ERN-LUNG) [ERN-LUNG] [843704] - Operating Grant
ERN-LUNG management report Y5 lead by UKF - [D.2]
Type: Document, reports...
Expected on: 01/03/2022
Improve quality and reduce quantity of communication by tailoring the Basecamp project management system to the specific needs of teams and working groups
ERN-LUNG Board and Medical Steering Committee meeting reports Y4 lead by UKF - [D.4]
Type: Document, reports...
Expected on: 01/12/2020
Organization of ERN-LUNG Board and Medical Steering Committee meetings
ERN-LUNG Board and Medical Steering Committee meeting reports Y5 lead by UKF - [D.5]
Type: Document, reports...
Expected on: 01/12/2021
Organization of ERN-LUNG Board and Medical Steering Committee meetings
Other meetings report Y4 lead by UKF - [D.7]
Type: Document, reports...
Expected on: 01/03/2021
Develop and organize other meetings together with ERS and other Scientific Organizations or Societies (schedule/report)
Other meetings report Y5 lead by UKF - [D.8]
Type: Document, reports...
Expected on: 01/03/2022
Develop and organize other meetings together with ERS and other Scientific Organizations or Societies (schedule/report)
Dissemination report Y5 lead by UKF - [D.11]
Type: Document, reports...
Expected on: 01/09/2021
Dissemination Plan – update
ERN-LUNG growth report Y4 lead by UKF - [D.13]
Type: Document, reports...
Expected on: 01/12/2020
Report on activities and achievements related to recruitment of Supporting Partners and/or Contact Points to fill the gaps in geographical coverage of ERN-LUNG
ERN-LUNG growth report Y5 lead by UKF - [D.14]
Type: Document, reports...
Expected on: 01/12/2021
Report on activities and achievements related to recruitment of Supporting Partners and/or Contact Points to fill the gaps in geographical coverage of ERN-LUNG
ERN-LUNG Registry Data Warehouse report Y4 lead by UKF - [D.16]
Type: Document, reports...
Expected on: 01/12/2020
Integrate ERN-LUNG Registry Data Warehouse into ERN-LUNG and among its members
ERN-LUNG Registry Data Warehouse report Y5 lead by UKF - [D.17]
Type: Document, reports...
Expected on: 01/12/2021
Integrate ERN-LUNG Registry Data Warehouse into ERN-LUNG and among its members
Clinical care pathways report Y4 lead by UKF - [D.18]
Type: Document, reports...
Expected on: 01/12/2020
Clinical care pathways including cross-border online expert advice system, cross-border online consultations, cross-border referral
Clinical care pathways report Y5 lead by UKF - [D.19]
Type: Document, reports...
Expected on: 01/03/2022
Clinical care pathways including cross-border online expert advice system, cross-border online consultations, cross-border referral
EXABO report Y4 lead by UKF - [D.20]
Type: Document, reports...
Expected on: 01/12/2020
Establish cross-border Online Expert Advice System (report)
EXABO report Y5 lead by UKF - [D.21]
Type: Document, reports...
Expected on: 01/03/2022
Establish cross-border Online Expert Advice System (report)
cross-border online consultations report Y4 lead by UKF - [D.22]
Type: Document, reports...
Expected on: 01/12/2020
Establish cross-border online consultations
cross-border online consultations report Y5 lead by UKF - [D.23]
Type: Document, reports...
Expected on: 01/03/2022
Establish cross-border online consultations
cross-border referral report Y4 lead by UKF - [D.24]
Type: Document, reports...
Expected on: 01/12/2020
Establish cross-border referral
cross-border referral report Y5 lead by UKF - [D.25]
Type: Document, reports...
Expected on: 01/03/2022
Establish cross-border referral
Education and training report Y4 lead by UKF - [D.26]
Type: Document, reports...
Expected on: 01/12/2020
Liaise with ELF and patient academy (for patients) and with ERS (for clinical care team members) for organizing meetings, workshops, and training programs
Education and training report Y5 lead by UKF - [D.27]
Type: Document, reports...
Expected on: 01/03/2022
Liaise with ELF and patient academy (for patients) and with ERS (for clinical care team members) for organizing meetings, workshops, and training programs
CTN report Y4 lead by UKF - [D.29]
Type: Document, reports...
Expected on: 01/12/2020
Webinars, workshops, and hands-on training labs on Clinical Trials Network development (schedule/report)
CTN report Y5 lead by UKF - [D.30]
Type: Document, reports...
Expected on: 01/12/2021
Webinars, workshops, and hands-on training labs on Clinical Trials Network development (schedule/report)
ERN-LUNG research report Y4 lead by UKF - [D.32]
Type: Document, reports...
Expected on: 01/03/2021
Annual report on research projects – update
ERN-LUNG research report Y5 lead by UKF - [D.33]
Type: Document, reports...
Expected on: 01/03/2022
Annual report on research projects – update
Patient satisfaction report Y4 lead by UKF - [D.35]
Type: Document, reports...
Expected on: 01/03/2021
Liaise with EURORDIS (Rare Barometer survey) for patient ‘satisfaction’ analysis in cooperation with ERN Coordinators’ Group
Patient satisfaction report Y5 lead by UKF - [D.36]
Type: Document, reports...
Expected on: 01/03/2022
Liaise with EURORDIS (Rare Barometer survey) for patient ‘satisfaction’ analysis in cooperation with ERN Coordinators’ Group
Comprehensive ERN-LUNG report Y5 lead by UKF - [D.38]
Type: Document, reports...
Expected on: 01/03/2022
Comprehensive report after 18 and 36 months
ERN-LUNG management report Y4 lead by UKF - [D.1]
Type: Document, reports...
Published on: 10/12/2020

Improve quality and reduce quantity of communication by tailoring the Basecamp project management system to the specific needs of teams and working groups
Dissemination report Y4 lead by UKF - [D.10]
Type: Document, reports...
Published on: 10/12/2020

Dissemination Plan – update
Comprehensive ERN-LUNG report Y4 lead by UKF - [D.37]
Type: Document, reports...
Published on: 10/12/2020

Comprehensive report after 18 and 36 months
ERN-LUNG research report Y3 lead by UKF - [D.31]
Type: Document, reports...
Published on: 17/03/2020

Annual report on research projects – update
Patient satisfaction report Y3 lead by UKF - [D.34]
Type: Document, reports...
Published on: 17/03/2020

Liaise with EURORDIS (Rare Barometer survey) for patient ‘satisfaction’ analysis in cooperation with ERN Coordinators’ Group
Other meetings report Y3 lead by UKF - [D.6]
Type: Document, reports...
Published on: 16/03/2020

Develop and organize other meetings together with ERS and other Scientific Organizations or Societies (schedule/report)
ERN-LUNG Registry Data Warehouse report Y3 lead by UKF - [D.15]
Type: Document, reports...
Published on: 20/12/2019

Integrate ERN-LUNG Registry Data Warehouse into ERN-LUNG and among its members
CTN report Y3 lead by UKF - [D.28]
Type: Document, reports...
Published on: 17/12/2019

Webinars, workshops, and hands-on training labs on Clinical Trials Network development (schedule/report)
ERN-LUNG Board and Medical Steering Committee meeting reports Y3 lead by UKF - [D.3]
Type: Document, reports...
Published on: 09/12/2019

Organization of ERN-LUNG Board and Medical Steering Committee meetings
ERN-LUNG growth report Y3 lead by UKF - [D.12]
Type: Document, reports...
Published on: 09/12/2019

Report on activities and achievements related to recruitment of Supporting Partners and/or Contact Points to fill the gaps in geographical coverage of ERN-LUNG
Dissemination report Y3 lead by UKF - [D.9]
Type: Document, reports...
Published on: 23/10/2019

Dissemination Plan – update
Details
Start date: 01/03/2019
End date: 28/02/2022
Duration: 36 month(s)
Current status: Ongoing
Programme title: 3rd Health Programme (2014-2020)
EC Contribution: € 589 163,00