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European Reference Network for Rare, Low Prevalence, Diagnosed and Undiagnosed Skin Disorders - Year 3 to 5 [ERN-Skin] [838437] - Operating Grant
Newsletter
4.3 Newsletter lead by AP-HP - [D.8]
Type: Other
Published on: 06/11/2020

ERN-Skin life: news on each thematic and transversal group, focus on the Skin e-PAG, information on training, meetings.
ERN-Skin Activity -Evaluation - Dissemination Report lead by AP-HP - [D.1]
Type: Document, reports...
Expected on: 28/02/2022
Report on the ERN-Skin achievements – Evaluation Report
Dissemination Report
1.2.2 List of new health care providers - members and affiliates lead by AP-HP - [D.3]
Type: Document, reports...
Expected on: 28/02/2022
Health care providers complying with ERN-Skin specific criteria and endorsed by their national authorities + affiliated partners
3.1 Clinical Decisions Support Documents lead by AP-HP - [D.4]
Type: Document, reports...
Expected on: 28/02/2022
Guidelines / recommendations / healthcare pathways for each thematic group of diseases
3.1 Common strategy for recommendations and research programmes lead by AP-HP - [D.5]
Type: Document, reports...
Expected on: 28/02/2022
Complementary and multidisciplinary approach to the road map for the elaboration of guidelines and research programmes
3.3 Report on collaborative projects with European and International Scientific Societies lead by AP-HP - [D.6]
Type: Document, reports...
Expected on: 28/02/2022
Report on the interaction between the EADV Task Forces, the EDF research networks, the ESPD, the ILDS and other European and international networks
6.5 ERN-Skin patient education programmes and tools lead by AP-HP - [D.11]
Type: Other
Expected on: 28/02/2022
Patient education programmes and tools accredited by the ERN-Skin
8.1 List of the 5 health care provider nominees invited to participate in the ERN-Skin courses lead by AP-HP - [D.13]
Type: Document, reports...
Expected on: 28/02/2022
List of the health care provider nominees from Member States with insufficient number of patients or lacking technology or expertise to provide highly specialized services, eligible to participate in ...
List of the health care provider nominees from Member States with insufficient number of patients or lacking technology or expertise to provide highly specialized services, eligible to participate in the 2019, 2020, 2021 ERN-Skin Courses
9.4 SPOT App Report lead by AP-HP - [D.14]
Type: Document, reports...
Expected on: 28/02/2022
Report on the test, launch and use of the final SPOT App
10.3 Recommendations for a sustainable ERN-Skin registry lead by AP-HP - [D.15]
Type: Document, reports...
Expected on: 28/02/2022
Recommendations for a sustainable ERN-Skin registry
1.1.8 Skin e-PAG minutes lead by AP-HP - [D.2]
Type: Document, reports...
Published on: 06/11/2020

Recommendations of ERN-Skin Patient Representatives
4.1 ERN-Skin Dissemination Plan lead by AP-HP - [D.7]
Type: Document, reports...
Published on: 06/11/2020

Dissemination plan of the ERN-Skin
5.3 2019, 2020, 2021 Course Programme lead by AP-HP - [D.9]
Type: Other
Published on: 06/11/2020

2019, 2020, 2021 Course Programmes
5.5 e-learning section on the ERN-Skin website lead by AP-HP - [D.10]
Type: Websites, patent filling, videos etc
Published on: 06/11/2020

Hosting and inclusion of the videos recorded during the 2019, 2020, 2021 ERN-Skin courses
7.3 Report on the practical use of CPMS lead by AP-HP - [D.12]
Type: Document, reports...
Published on: 06/11/2020

Report on the virtual consultations for the ERN-Skin panels