Report on the clinical case discussions conducted on the CPMS during Y2, including: number of patient case discussions by RDWG, number of summary of case discussions available and summary available fo...
Report on the clinical case discussions conducted on the CPMS during Y2, including: number of patient case discussions by RDWG, number of summary of case discussions available and summary available for education. Case discussion monthly, but report M12. Milestone: M6, control point on the implementation.
Tool: availability of VASCERN App version 2 M12. M1-M12 Regular updates and adding new informations on the online back office. M6: milestone, definition of new settings by eHealth WG.
Tool (videos, content available on the website): availability of new Pills of Knowledge on VASCERN YouTube (15 PoK videos) and on our website (links towards PoK, multilingual education material), and ...
Tool (videos, content available on the website): availability of new Pills of Knowledge on VASCERN YouTube (15 PoK videos) and on our website (links towards PoK, multilingual education material), and translations of patient information material. M6 milestone: control point
Publication of 2 new RDWG Do’s and Don’ts Factsheets for rare diseases patients facing frequent situation. RDWGs involved: PPL and VASCA. Possible updates of existing factsheets for the other RDWG...
Publication of 2 new RDWG Do’s and Don’ts Factsheets for rare diseases patients facing frequent situation. RDWGs involved: PPL and VASCA. Possible updates of existing factsheets for the other RDWGs. M6 milestone: control point
Tool: social network pages existing (Twitter, Facebook, YouTube) with regular updates, new content. Report: analysis of communication tools and impacts
Depending on the progress of the interERN / Board of Member States level framework to monitor and assess ERN activities, an evaluation report will be provided based on the indicators and monitoring to...
Depending on the progress of the interERN / Board of Member States level framework to monitor and assess ERN activities, an evaluation report will be provided based on the indicators and monitoring tool defined by the interERN framework.