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BRidging Information and Data Generation for Evidence-based Health Policy and Research [BRIDGE Health] [664691] - Project
Project abstract

BRIDGE Health (BRidging Information and Data Generation for Evidence-based Health Policy and Research) aims to create European health information (EU-HI) and data generation networks covering major EU health policy areas. The network uses comprehensive experience and assures a knowledge transfer from past health and research frameworks.

The aim is to work towards a comprehensive, integrated and sustainable EU-HI supporting evidence-based health policy and research for the EU and Member States by providing blueprints and/or concepts of building blocks for a future EU-HI research infrastructure consortium (ERIC-HI).

The project bridges key EU projects in domains of population and health system monitoring and indicator development, health examination surveys, environment and health, population injury and disease registries, clinical and administrative health data collection systems and methods of health system monitoring and evaluation.

The project aims to:
1) enhance the transferability of health information and data for policy and improve the utility and use of data and indicators for stakeholders in policy making, public health surveillance and health care;
2) reduce health information inequality within the EU and within MS;
3) develop a blueprint for a sustainable and integrated EU Health information system by developing common methods for a) standardising the collection and exchange of health information within and between domains, between MS, including e-health platforms; b) ensuring data quality, including procedures for internal and external validation of health indicators; c) undertaking priority setting exercises for health information, d) addressing ethical and legal issues associated with the collection and use of health data within MS and the EU.

Coordination, dialogue and interaction with DG-SANCO, the Expert Group on Health Information, Eurostat, DG Research and other DGs ensure the sustainability of the work and bridges to a future ERIC-HI.

Summary of context, overal objectives, strategic, relevance and contribution of the action

Health policy and decision making must be based on robust evidence in the form of high quality and timely data on population health and health systems and thorough research outcomes. BRIDGE Health (BRidging Information and Data Generation for Evidence-based Health Policy and Research) aims to create European health information and data generation networks covering major EU health policy areas. It is working towards a comprehensive, integrated and sustainable EU health information system supporting evidence-based health policy and research for the EU and Member States by providing blueprints and/or concepts of building blocks for a future integrated and sustainable EU health information system which may result in a European research infrastructure consortium on health information.

BRIDGE Health contributes to the action of the health programme through better informed health and health-in-all policies. The project focuses on essential pillars for health information needs: (1) to be available at EU, national and subnational level, including information on social inequalities and vulnerable groups; (2) to be structured and comparable; (3) to include information regarding key determinants of ill health; (4) to include information on health care systems and (5) to build on best practice information.

More specifically, BRIDGE Health covers as specified in the call under 2.1.3.3. Towards a sustainable health monitoring and reporting system (Point 3.7. of Annex I to the Programme Regulation) following specific activities in the domain of (a) population health and health systems; monitoring by using common validated indicators; (b) harmonized population based health examination surveys; (c) monitoring of impacts of environmental chemicals to health; (d) monitoring and reporting of perinatal and child health; (e) platform for population based registries for diseases; (f) platform for injury surveillance; (g) platform for Clinical and Administrative data on Health Care; (h) establishing standards and approaches for clinical and administrative health data collection and data sharing between countries; and (i) providing harmonised indicators, methods and tools to support monitoring and evaluation of health care systems in interested countries.

Methods and means

The methods and means to meet the aim are the coordination and convergence of the existing knowledge and realisations of existing key projects in health information from the previous health programmes in order to work towards a blueprint of a European Union health information system. To enhance synergy between the previous vertical approaches, BRIDGE Health organises the different Work Packages (WPs) around the sets of generic or transversal aims.

The methods and means to reach the specific aims of the WPs range from literature review (WP 4, 6, 12), conceptual development (WP 4, 5, 7, 12), transferability to policy: stakeholder surveys, policy mapping exercises through among other things literature review, inventory of gaps identified in different domains of health information, inventory of outcomes of EU funded studies in the domain of population health and health systems and comparative studies (WP 1, 4, 5, 6, 12), network consolidation (WP 1, 4-12), indicator development (WP 4, 8, 12), website updating (WP 1, 5, 7, 8, 9, 12), survey methodology (WP 5, 6, 8), training (WP 5, 7, 8, 9), priority setting exercises and methods development (WP 5, 6, 7, 9, 12) data collection, analysis, quality evaluation and validation (WP 1, 7, 8, 9, 10, 11).

Work performed during the reporting period

The main outputs achieved so far of the project as a whole is the concept paper, which includes the scope, tasks, activities and governance structure, of a future European health information structure. The paper presents the strengths and limitations of a set of possible structures including a European Research Infrastructure Consortium (ERIC) on Health Information. Additionally, BRIDGE Health has brought key players together and put health information on the political agenda at Member State and European level. BRIDGE Health has even extended its activities to take the lead in drafting the technical and scientific description of the ERIC on health information.

Work Package (WP) specific outputs are the interim report with annexes (WP 1), the technical report of: (WP 4) the status of the ECHI; (WP 8) the network consolidation, how to set up a registry, training guidelines; (WP 9) data quality, injury status, harmonising data capturing process in the EU, guidelines data administrators; (WP 10) common dataset, output files, blueprint data infrastructure; and (WP 11) data protocols update.

The main output achieved so far and their potential impact and use by target group (including benefits)

The main outputs achieved so far of the project as a whole is the concept paper, which includes the scope, tasks, activities and governance structure, of a future European health information structure. The paper presents the strengths and limitations of a set of possible structures including a European Research Infrastructure Consortium (ERIC) on Health Information. Additionally, BRIDGE Health has brought key players together and put health information on the political agenda at Member State and European level. BRIDGE Health has even extended its activities to take the lead in drafting the technical and scientific description of the ERIC on health information.

Work Package (WP) specific outputs are the interim report with annexes (WP 1), the technical report of: (WP 4) the status of the ECHI; (WP 8) the network consolidation, how to set up a registry, training guidelines; (WP 9) data quality, injury status, harmonising data capturing process in the EU, guidelines data administrators; (WP 10) common dataset, output files, blueprint data infrastructure; and (WP 11) data protocols update.

Achieved outcomes compared to the expected outcomes

BRIDGE health has achieved more than was initially planned. It has taken the lead on the creation of the ERIC on health information and has made significant progress both in the Work Packages and the Horizontal Activities. Some anticipated delays have occurred to obtain data in WP 10 and to have the consortium agreement signed by all partners, but are being addressed. All other deliverables and milestones have been reached.

Dissemination and evaluation activities carried out so far and their major results

BRIDGE Health has been active in its dissemination activities. A leaflet and website has been created at the start of the project. Additionally, BRIDGE health has been active on social media, has created a newsletter, and participated in international conferences. BRIDGE health has participated in multiple national and international events and meetings to have a stronger impact and increase its visibility. BRIDGE Health has achieved wide-spread recognition and is engaged in health information discussion at national and international level.

Details
Start date: 01/05/2015
End date: 31/10/2017
Duration: 30 month(s)
Current status: Finalised
Programme title: 3rd Health Programme (2014-2020)
EC Contribution: € 3 473 044,23
Portfolio: Health indicators