- ECHI disability indicators: Design and definition of a set of disability indicators and related survey methodology (RKI)
- Health indicator evaluation and prospect report (RIVM)
- Health indicator repository content on Health indicators (RIVM)
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- Blueprint for a strategy to bridge data collections from monitoring, indicators and health data registries and for setting priorities for Europe wide collaborative work including research priorities to close gaps in environmental exposure-health outcome -relationship and proposals to integrate and develop new methods and tools
- Blueprint on options for an integrated environmental health monitoring system
- Blueprint for the strategic role of environmental health surveillance in European health information and use of HBM in regulatory decision-making
- Follow-up of activities including questionnaire, newsletters, meeting proceedings and updated and expanded list of contact persons/organisations
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Article 1 (NIPH): Blueprint for Health Information in RMNCH in Europe; scientific paper
Article 2 (DCU): Ways of making more effective use of routine data to examine the lives of children and adolescents in Europe
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- Guidelines for data linkage, transmission using a micro-data repository and mapping priorities among stakeholders (INSERM)
- Report containing describing observatory and including guidelines of data harmonization exchange, prioritization, and bridging within cohorts, and bridging of cohort data with registry data (CREAL)
- Report on sources of routine data on child and adolescent health across Europe (DCU)
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4 technical reports:
- Manual of operations with stepwise procedures for population based register implementation, sharing sources of information and including population size, sources of information, standardized diagnostic criteria, internal and external validation, elaboration of disease occurrence indicators (ISS)
- Guidelines for training personnel involved in the implementation of population based registers of chronic diseases at local level including definitions, procedures for record linkage, validation, assessment of disease (ISS)
- Blueprint of open source software platform for population-based chronic diseases registries, based on the BIRO experience (UNITOV)
- Manual of requirements and technical specifications for users and programmers (UNITOV)
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5 technical reports:
- National estimates of injury related disability and direct costs
- Report on sustainability of IDB exchange at EU level under the new Health Information Infrastructure 2018+
- Second of two bi-annual reports on trends, country comparison and ECH-29 indicator
- Training materials and tools for national injury data administrators for national implementation
- Indicators for measuring injury related health inequalities in countries
- Protocols for data comparison between IDB data on the one hand and information from other sources such as discharge registers and national health survey data
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5 technical reports:
- Technical manual chapter on the existing healthcare administrative data systems contextualized on their respective performance frameworks (IACS)
- Technical manual chapter on ethical and legal issues (FE UNL)
- Common Meaningful Information Dataset (IACS)
- Description of Output files – performance indicators and adjusters (IACS)
- Technical manual chapter on Blueprint of the common data infrastructure (IACS)
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2 technical reports:
- A report on pilot study using data from four large towns in which the episode approach is extended to primary health and social services
- A report on comparison of feasibility and quality of performance information calculated from administrative data sets (with and without possibility for register linkages) and population based registries for disease.
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A blueprint of the process to be followed to build a data platform built upon the integration of different sources -administrative data, surveys’ data or registries data, both population or disease-based
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4 technical reports:
- Handbook/Tab on documentation standards for displaying health system indicators
- Report on inclusion and assessment criteria for IP, CP, PP
- Blueprints of IP, CP, PP and HSPA passports
- Report on recommendations for further development of building blocks of a health system information repository
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- Updated list of EHES network members
- Updated EHES Manual and related training materials
- Site visits report
- Blueprint of data transfer and management system
- Blueprint of data transfer and management system and evaluation and reporting system (including structure of joint database)
- Blueprint of actions to ensure equal health information in all MSs
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Concept paper, including scope, tasks, activities and governance structure, of a future European Health Information Structure. The paper presents the strengths and limitations of a set of possible structures including a European Research Infrastructure Consortium (ERIC) on Health Information. The concept paper will be presented in a form that can serve as a draft agreement between interested Member States, candidate and EEA/EFTA countries and international organisations when submitting an application for an ERIC on Health Information to the European Commission or when opting for another structure
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Three technical reports:
- Collaborative network of fieldwork experts involved in surveillance of chronic diseases and interested in building a platform of population based registers (ISS)
- Draft blueprint of open source software platform for population-based chronic diseases registries, based on the BIRO experience (UNITOV)
- Draft of manual of requirements and technical specifications for users and programmers (UNITOV)
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4 technical reports:
- Report on country uploads (quality/improvement actions)
- First of two bi-annual reports on trends, country comparison and ECH-29 indicator
- EU-Harmonized injury data capture methodology and classification and updates of the manual of operations for the implementation of national injury registers
- Update of support tools for national injury data administrators (coding guides/ quality control software tools/extrapolation tool/conversion software)
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