- ECHI disability indicators: Design and definition of a set of disability indicators and related survey methodology (RKI) - Health indicator evaluation and prospect report (RIVM) - Health indicator r...
- ECHI disability indicators: Design and definition of a set of disability indicators and related survey methodology (RKI) - Health indicator evaluation and prospect report (RIVM) - Health indicator repository content on Health indicators (RIVM)
Tech reports Environment and health monitoring, role environmental health and biomonitoring, network
lead by BIPRO GMBH
- [D.10]
- Blueprint for a strategy to bridge data collections from monitoring, indicators and health data registries and for setting priorities for Europe wide collaborative work including research priorities...
- Blueprint for a strategy to bridge data collections from monitoring, indicators and health data registries and for setting priorities for Europe wide collaborative work including research priorities to close gaps in environmental exposure-health outcome -relationship and proposals to integrate and develop new methods and tools - Blueprint on options for an integrated environmental health monitoring system - Blueprint for the strategic role of environmental health surveillance in European health information and use of HBM in regulatory decision-making - Follow-up of activities including questionnaire, newsletters, meeting proceedings and updated and expanded list of contact persons/organisations
Scientific articles on Environmental Health monitoring, Integrated Environmental Health monitoring
lead by BIPRO GMBH
- [D.11]
Article 1: Review on state of the art of environmental health monitoring Article 2: Chances of and challenges for an integrated environmental health monitoring system
Scientific articles on Blueprint RMNCH health information, Using routine data on children and adolescent health
lead by NIPH
- [D.12]
Article 1 (NIPH): Blueprint for Health Information in RMNCH in Europe; scientific paper Article 2 (DCU): Ways of making more effective use of routine data to examine the lives of children and adolesce...
Article 1 (NIPH): Blueprint for Health Information in RMNCH in Europe; scientific paper Article 2 (DCU): Ways of making more effective use of routine data to examine the lives of children and adolescents in Europe
Tech reports data linkage, guidelines harmonisation exchange of data, routine data sources
lead by NIPH
- [D.13]
- Guidelines for data linkage, transmission using a micro-data repository and mapping priorities among stakeholders (INSERM) - Report containing describing observatory and including guidelines of data...
- Guidelines for data linkage, transmission using a micro-data repository and mapping priorities among stakeholders (INSERM) - Report containing describing observatory and including guidelines of data harmonization exchange, prioritization, and bridging within cohorts, and bridging of cohort data with registry data (CREAL) - Report on sources of routine data on child and adolescent health across Europe (DCU)
Tech reports, a.o. How to set up a register, Training guidelines
lead by ISS
- [D.15]
4 technical reports: - Manual of operations with stepwise procedures for population based register implementation, sharing sources of information and including population size, sources of information,...
4 technical reports: - Manual of operations with stepwise procedures for population based register implementation, sharing sources of information and including population size, sources of information, standardized diagnostic criteria, internal and external validation, elaboration of disease occurrence indicators (ISS) - Guidelines for training personnel involved in the implementation of population based registers of chronic diseases at local level including definitions, procedures for record linkage, validation, assessment of disease (ISS) - Blueprint of open source software platform for population-based chronic diseases registries, based on the BIRO experience (UNITOV) - Manual of requirements and technical specifications for users and programmers (UNITOV)
Tech reports Cost injury, Sustainable IDB exchange, Injury status, Training material, Health inequality in injury, Comparing IDB data with other sources on injury data
lead by SU
- [D.17]
5 technical reports: - National estimates of injury related disability and direct costs - Report on sustainability of IDB exchange at EU level under the new Health Information Infrastructure 2018+ - S...
5 technical reports: - National estimates of injury related disability and direct costs - Report on sustainability of IDB exchange at EU level under the new Health Information Infrastructure 2018+ - Second of two bi-annual reports on trends, country comparison and ECH-29 indicator - Training materials and tools for national injury data administrators for national implementation - Indicators for measuring injury related health inequalities in countries - Protocols for data comparison between IDB data on the one hand and information from other sources such as discharge registers and national health survey data
Tech reports current system description, ethical & legal issues, common dataset, output files, blueprint data infrastructure
lead by IACS
- [D.18]
5 technical reports: - Technical manual chapter on the existing healthcare administrative data systems contextualized on their respective performance frameworks (IACS) - Technical manual chapter on et...
5 technical reports: - Technical manual chapter on the existing healthcare administrative data systems contextualized on their respective performance frameworks (IACS) - Technical manual chapter on ethical and legal issues (FE UNL) - Common Meaningful Information Dataset (IACS) - Description of Output files – performance indicators and adjusters (IACS) - Technical manual chapter on Blueprint of the common data infrastructure (IACS)
Tech reports quality, blueprint platform
lead by IACS
- [D.19]
2 technical reports: - A report on pilot study using data from four large towns in which the episode approach is extended to primary health and social services - A report on comparison of feasibility ...
2 technical reports: - A report on pilot study using data from four large towns in which the episode approach is extended to primary health and social services - A report on comparison of feasibility and quality of performance information calculated from administrative data sets (with and without possibility for register linkages) and population based registries for disease.
Scientific article Blueprint of the process to be followed to build a data platform
lead by ISCIII
- [D.23]
A blueprint of the process to be followed to build a data platform built upon the integration of different sources -administrative data, surveys’ data or registries data, both population or disease-...
A blueprint of the process to be followed to build a data platform built upon the integration of different sources -administrative data, surveys’ data or registries data, both population or disease-based
Tech reports Manual presentation health system indicators, Inclusion assessment, Blueprint performance passports, Health system information repository
lead by HSI
- [D.24]
4 technical reports: - Handbook/Tab on documentation standards for displaying health system indicators - Report on inclusion and assessment criteria for IP, CP, PP - Blueprints of IP, CP, PP and HSPA ...
4 technical reports: - Handbook/Tab on documentation standards for displaying health system indicators - Report on inclusion and assessment criteria for IP, CP, PP - Blueprints of IP, CP, PP and HSPA passports - Report on recommendations for further development of building blocks of a health system information repository
- Updated list of EHES network members - Updated EHES Manual and related training materials - Site visits report - Blueprint of data transfer and management system - Blueprint of data transfer and man...
- Updated list of EHES network members - Updated EHES Manual and related training materials - Site visits report - Blueprint of data transfer and management system - Blueprint of data transfer and management system and evaluation and reporting system (including structure of joint database) - Blueprint of actions to ensure equal health information in all MSs
Consortium agreement
lead by WIV-ISP (IPH)
- [D.3]
Concept paper, including scope, tasks, activities and governance structure, of a future European Health Information Structure. The paper presents the strengths and limitations of a set of possible str...
Concept paper, including scope, tasks, activities and governance structure, of a future European Health Information Structure. The paper presents the strengths and limitations of a set of possible structures including a European Research Infrastructure Consortium (ERIC) on Health Information. The concept paper will be presented in a form that can serve as a draft agreement between interested Member States, candidate and EEA/EFTA countries and international organisations when submitting an application for an ERIC on Health Information to the European Commission or when opting for another structure
Tech reports, a.o. on Network consolidation
lead by ISS
- [D.14]
Three technical reports: - Collaborative network of fieldwork experts involved in surveillance of chronic diseases and interested in building a platform of population based registers (ISS) - Draft blu...
Three technical reports: - Collaborative network of fieldwork experts involved in surveillance of chronic diseases and interested in building a platform of population based registers (ISS) - Draft blueprint of open source software platform for population-based chronic diseases registries, based on the BIRO experience (UNITOV) - Draft of manual of requirements and technical specifications for users and programmers (UNITOV)
4 technical reports: - Report on country uploads (quality/improvement actions) - First of two bi-annual reports on trends, country comparison and ECH-29 indicator - EU-Harmonized injury data capture m...
4 technical reports: - Report on country uploads (quality/improvement actions) - First of two bi-annual reports on trends, country comparison and ECH-29 indicator - EU-Harmonized injury data capture methodology and classification and updates of the manual of operations for the implementation of national injury registers - Update of support tools for national injury data administrators (coding guides/ quality control software tools/extrapolation tool/conversion software)