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An EU Rare Diseases Registry for Wolfram Syndrome, Alstrom Syndrome and Bardet Biedl Syndrome [EURO-WABB] [20101205] - Project

Other deliverables - 22 output(s)

D01 - 01 - Final report (EN) lead by University of Birmingham C/O Diabetes Unit - [D.1]
Type: Other
Published on: 01/01/2011
D01 - 02 - Final report Appendix (EN) lead by University of Birmingham C/O Diabetes Unit - [D.2]
Type: Other
Published on: 01/01/2011
D01 - 03 - Leaflet (EN) lead by University of Birmingham C/O Diabetes Unit - [D.3]
Type: Other
Published on: 01/01/2011
D01 -01 - Interim report (EN) lead by University of Birmingham C/O Diabetes Unit - [D.4]
Type: Other
Published on: 01/01/2011
D01 -02 - Interim report 2 (EN) lead by University of Birmingham C/O Diabetes Unit - [D.5]
Type: Other
Published on: 01/01/2011
D01 -03 - Report on achivement (EN) lead by University of Birmingham C/O Diabetes Unit - [D.6]
Type: Other
Published on: 01/01/2011
D01 -04 - Leaflet (EN) lead by University of Birmingham C/O Diabetes Unit - [D.7]
Type: Other
Published on: 01/01/2011
D02 - 01 - Scoping evaluation report of project (EN) lead by University of Birmingham C/O Diabetes Unit - [D.8]
Type: Other
Published on: 01/01/2011
D02 - 02 - External evaluation plan (EN) lead by University of Birmingham C/O Diabetes Unit - [D.9]
Type: Other
Published on: 01/01/2011
D02 - 03 - Activities_CV (EN) lead by University of Birmingham C/O Diabetes Unit - [D.10]
Type: Other
Published on: 01/01/2011
D02 - 04 - Letter (EN) lead by University of Birmingham C/O Diabetes Unit - [D.11]
Type: Other
Published on: 01/01/2011
D03 - Scoping Exercice & reports (EN) lead by University of Birmingham C/O Diabetes Unit - [D.12]
Type: Other
Published on: 01/01/2011
D04 - 01 - Development of a web based registry (EN) lead by University of Birmingham C/O Diabetes Unit - [D.13]
Type: Other
Published on: 01/01/2011
D04 - 02 - Development of a web based registry report (EN) lead by University of Birmingham C/O Diabetes Unit - [D.14]
Type: Other
Published on: 01/01/2011
D05 - Publication of consensus management guidelines and datasets (EN) lead by University of Birmingham C/O Diabetes Unit - [D.15]
Type: Other
Published on: 01/01/2011
D06 - Input of datasets on at least 300 patients with RDS disease (100 for each main disease) (EN) lead by University of Birmingham C/O Diabetes Unit - [D.16]
Type: Other
Published on: 01/01/2011
D07 - Development of an EU Genechips for genetic testing (EN) lead by University of Birmingham C/O Diabetes Unit - [D.17]
Type: Other
Published on: 01/01/2011
D08 - A report on the learning needs of health professionals (EN) lead by University of Birmingham C/O Diabetes Unit - [D.18]
Type: Other
Published on: 01/01/2011
D09 - Development of health professional education and patient information material to support the Registry (EN) lead by University of Birmingham C/O Diabetes Unit - [D.19]
Type: Other
Published on: 01/01/2011
D10 - Delivery of an EU workshop to disseminate the findings at the end of the project (EN) lead by University of Birmingham C/O Diabetes Unit - [D.20]
Type: Other
Published on: 01/01/2011
Final Report lead by University of Birmingham C/O Diabetes Unit - [D.21]
Type: Other
Published on: 01/01/2011
Internal Assessment lead by University of Birmingham C/O Diabetes Unit - [D.22]
Type: Other
Published on: 01/01/2011
Details
Start date: 01/01/2011
End date: 01/07/2014
Duration: 42 month(s)
Current status: Finalised
Programme title: Second Programme of Community action in the Field of Health 2008-2013
Call: (2HP-PRG-THEM) Promote Health (Hp-2010)
Topic: (2HP.HP-20102-33) PROMOTE HEALTH (HP-2010)
EC Contribution: € 900 000,00
Keywords: Diagnostic, Health system, Patients registries, Quality evaluation, Rare diseases and disorders
Portfolio: Rare diseases
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