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Europa Donna Breast Cancer Advocacy Leader Conference [EDBCALC] [20094204] - Conference
General objectives

1) Host at least 70 participants (of the 86 to be invited), coming from a minimum of 37 European countries (total of 43 countries)

2) Provide presentations delivered by renowned experts who will give simple, clear and scientifically sound information that conference participants can use effectively in their advocacy efforts of disseminating up-to-date breast health information to women and girls in their countries

3) Provide a forum in which attendees from a broad spectrum of EU member states as well as other European countries learn from one another through the exchange of ideas, experiences and best practices

4) Provide workshop facilitators who have broad and deep knowledge of breast cancer issues and a successful advocacy

5) track record who will mentor conference attendees with the ultimate aim of overcoming inequalities by helping to bring every country to the level of breast health service described in the EU Guidelines and equalizing European womens breast health knowledge

6) Produce and disseminate a conference Proceedings Highlights document of 12 pages that can be used by
- conference attendees, as an aid to pass on information to other advocates and to the public in their countries;
- advocates who are not able to attend the conference but want to be informed and
- anyone in the public who is interested in breast health matters

Expected achievements

One result of the conference will be that attendees will learn from each other as well as from guest speakers and will return to their countries armed with accurate, up-to-date information and proven strategies to lead their countries in advocating for improved breast health services and directly educating women and girls about breast health. These expected outcomes will be measured at the conclusion of the conference as well as 3 and 6 months after the conference.

This conference will also reduce inequalities through various conference sessions, including:
- 1st plenary sessionEffective leadership: why using evidence in advocating for implementation of the EU GUIDELINES is so important in reducing inequalities regarding breast health.

* 1st workshop sessionReducing Inequalities in Breast Cancer Services Across European Countries. All facilitators have a great deal of successful advocacy experience and represent countries with highly developed publicly financed breast cancer services where positive change has already taken place. They will give a presentation using firsthand experiences and best practices from their own countries to illustrate how inequalities can be overcome. Facilitators will suggest methods that have been used successfully so that they can be employed by those from countries with lower standards in order to achieve a higher standard, thus reducing inequalities. There will be opportunity for discussion, information sharing and problem-solving.

* 2nd workshop sessionReducing Inequalities in Information Provision Across European Countries. All facilitators represent advocacy organisations with highly developed information mechanisms and have found effective ways to disseminate breast health information in their countries. They will share the activities they have conducted for Breast Health Day 2009 and pass on their methods so that they can be successfully translated/utilised by other countries and cultures, thus reducing inequalities in information provision. There will be opportunity for discussion, information sharing and problem-solving.

Bringing patient advocates from different countries together as described above to learn from one another will lead to the reduction, and hopefully the elimination, of inequalities in services and public health knowledge. Likewise, To the extent possible, these expected outcomes (regarding mentoring and information sharing) will be measured at the conclusion of the conference as well as 3 and 6 months after the conference.

Target audience

A Europa Donna National Forum has been set up in each participating country which is made up of representatives from local affiliated groups as well as individuals to ensure a well coordinated country-wide effort. As called for in EDs constitution, each country elects officials, one National Representative and one National Delegate, to lead and represent it in matters pertaining to Europe as a whole (see ED Constitution on organisational website). EDBCALC target participants are these 2 leaders from each ED member country, namely, the National Representative and the National Delegate.

Immediately after their election, these women are trained through attendance at Europa Donnas Advocacy Training programme and our conferences and most have extensive lobbying experience. And because target participants have beenelected to lead by their own breast-cancer-activist peers in their countries, they are by definition currently the people with the most influence and potential to guide their countries and to work toward realizing conference objectives in their countries. For the conference, each participant will be required to submit an updated CV, indicating her advocacy experience up to that moment.

To make this event accessible to all member countries regardless of financial means, ED will provide bursaries for travel and hotel cost for 2 attendees from each country.

Conference programme

EDBCALC begins with intro by ED President, followed by plenary sessions on the topic Overcoming Obstacles in Advocating for Implementation of the European Guidelines. Speakers are EDs Executive Director, a European Commission rep, and invited speakers Dr. med. Lawrence von Karsa (IARC) or C.J.M. de Wolf, MD(Adsan) and Dr. Marco Rosselli del Turco (EUSOMA).* Discussion sessions will follow the latter 2 presentations.

Participants are then broken out into 3 workshops so that each workshop represents countries with a maximum diversity of public health services currently available. Topic: Reducing Inequalities in Breast Cancer Services Across European Countries. Each facilitator gives a presentation followed by a problem-solving discussion in which participants exchange experiences, ideas and best practices. Each facilitator has a great deal of successful experience in advocating for positive change in her county; facilitators will mentor participants coming from countries with less developed services to help them reach a higher standard. Experts (Drs. von Karsa/de Wolf and del Turco) circulate.

Afternoon plenary sessions topic: Breast Cancer Prevention: Promoting Healthy Ways of Life through Breast Health Day (BHD) and Information Dissemination. Speakers include EDs Executive Director and invited speaker Dr. Carlo LaVecchia (epidemiologist, Mario Negri Institute, Milan, and IARC/WHO). A discussion session will follow.

Participants are broken out strategically into 3 workshops. Topic: Reducing Inequalities in Information Provision Across European Countries. In each workshop there will be a 10-minute presentation by ED representatives from countries that will have been highlighted for their 2009 BHD activities, and followed by discussion and problem-solving ideas. The facilitators selected are highly knowledgeable in the fields of health promotion/science or strategic marketing. Participants exchange experiences, ideas and best practices regarding BHD.

Final plenary session: rapporteurs report on the days workshops followed by discussion, etc. Solidarity-building dinner to follow.

Start date: 25/09/2010
End date: 25/11/2011
Duration: 14 month(s)
Current status: Finalised
Programme title: Second Programme of Community action in the Field of Health 2008-2013
EC Contribution: € 50 000,00