We propose a conference that brings together actors and stakeholders to produce a roadmap for a sustainable data-sharing system for public health.
• Describe current and (near) future needs for use of molecular data in infectious disease control and prevention
• Define specific needs and requirements for data-sharing for public health action
• Review barriers to effective data sharing for public health action with an emphasis on international exchange
• Review best practices
• Identify possible solutions
• Prepare a set of recommendations and a roadmap for developing effective data-sharing for public health action
In order to do this, we propose the following steps:
1. Preparation of a background documents
• Preparation of a background document from a legal perspective
A European health law specialist has been contacted and will be recruited as a consultant to provide a background review of needs and requirements for data-sharing for public health action, best practices and barriers.
• Preparation of background document from a user’s perspective
A PhD in molecular virology has been contacted to provide a background review of current and (near) future needs for use of molecular data in infectious disease control and prevention. This will be done by comparing existing international data collections that are used for surveillance and control of infectious diseases, with respect to aims of the data collection, set-up, rules of engagement, uses of the data for international public health action, and confidentiality.
2. During the conference, we will present the approach, conclusions and recommendations from the background documents. The discussion will be structured to provide the following summaries:
• Strengths and weaknesses of the different systems
• key success factors of the systems
• Key barriers to effective data sharing
3. Workshops will be organised to discuss a possible roadmap towards a stable data sharing policy including technical and legal options. The discussions for these workshops will be triggered through invited presentations representing best practices.
The background documents will be published in high impact journals targeting the infectious disease community and the public health legal community. The meeting conclusions and recommendations will be drafted in collaboration with representatives from the EC, who have indicated their interest in putting the outcomes on the agenda of the world health assembly.
Information regarding the conference agenda are on the draft document bellow.