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20083278
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OPERATING GRANT FOR RARE DISEASE ASSOCIATIONS [OPERA] [20083278] - Operating Grant
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Summary
Partners
Outputs
Newsletter
D13 - E-Newsletter (EN) lead by
European Organisation for Rare Diseases
- [D.10]
Type:
Other
Published on:
01/01/2009
Other deliverables - 32 output(s)
D01 - Final activity report OPERA (EN) lead by
European Organisation for Rare Diseases
- [D.1]
Type:
Other
Published on:
01/01/2009
D03 - Database Eurordis membership and other patient organisations (EN) lead by
European Organisation for Rare Diseases
- [D.2]
Type:
Other
Published on:
01/01/2009
D04 - 1 Workshop Rare ! Together of disease Specific European Networks (EN) lead by
European Organisation for Rare Diseases
- [D.3]
Type:
Other
Published on:
01/01/2009
D07 - Draft Q&A document to Etablishing and developing a European rare Disease Federation (EN) lead by
European Organisation for Rare Diseases
- [D.4]
Type:
Other
Published on:
01/01/2009
D08 - Summer school 2009 (EN) lead by
European Organisation for Rare Diseases
- [D.5]
Type:
Other
Published on:
01/01/2009
D09 - Drup development Pedagogic kil (EN) lead by
European Organisation for Rare Diseases
- [D.6]
Type:
Other
Published on:
01/01/2009
D11 - Participation in EMEA committees and working parties: COMP, PDCO, PCWP (EN) lead by
European Organisation for Rare Diseases
- [D.7]
Type:
Other
Published on:
01/01/2009
D12-01 - Video contest- Eurordis website (EN) lead by
European Organisation for Rare Diseases
- [D.8]
Type:
Other
Published on:
01/01/2009
D12-02 - Video Contest on RDDay website (EN) lead by
European Organisation for Rare Diseases
- [D.9]
Type:
Other
Published on:
01/01/2009
D14-01-01 - Logo & Banner lead by
European Organisation for Rare Diseases
- [D.11]
Type:
Other
Published on:
01/01/2009
D14-01-02 - Rare Disease Day poster (EN) lead by
European Organisation for Rare Diseases
- [D.12]
Type:
Other
Published on:
01/01/2009
D14-01-03 - Poster (EN) lead by
European Organisation for Rare Diseases
- [D.13]
Type:
Other
Published on:
01/01/2009
D14-01-04 - Information pack (EN) lead by
European Organisation for Rare Diseases
- [D.14]
Type:
Other
Published on:
01/01/2009
D14-01-05 - Website (EN) lead by
European Organisation for Rare Diseases
- [D.15]
Type:
Other
Published on:
01/01/2009
D14-01-06 - EU Media Review (EN) lead by
European Organisation for Rare Diseases
- [D.16]
Type:
Other
Published on:
01/01/2009
D14-02 - Rare Disease Day Book (EN) lead by
European Organisation for Rare Diseases
- [D.17]
Type:
Other
Published on:
01/01/2009
D15 - Online Patient Community Portal-Pilot Phase (EN) lead by
European Organisation for Rare Diseases
- [D.18]
Type:
Other
Published on:
01/01/2009
D16 - Eurordis Website Version 4 (EN) lead by
European Organisation for Rare Diseases
- [D.19]
Type:
Other
Published on:
01/01/2009
D2-01 - CNA Workshop (EN) lead by
European Organisation for Rare Diseases
- [D.20]
Type:
Other
Published on:
01/01/2009
D2-02 - CNA Workshop (EN) lead by
European Organisation for Rare Diseases
- [D.21]
Type:
Other
Published on:
01/01/2009
D5-01 - Respite Care Services (EN) lead by
European Organisation for Rare Diseases
- [D.22]
Type:
Other
Published on:
01/01/2009
D5-02 - Therapeutic Recreation Programmes (EN) lead by
European Organisation for Rare Diseases
- [D.23]
Type:
Other
Published on:
01/01/2009
D6-01 - European Helplines Network 1 (EN) lead by
European Organisation for Rare Diseases
- [D.24]
Type:
Other
Published on:
01/01/2009
D6-02 - European Helplines Network 2 (EN) lead by
European Organisation for Rare Diseases
- [D.25]
Type:
Other
Published on:
01/01/2009
D6-03 - European Helplines Network 3 (EN) lead by
European Organisation for Rare Diseases
- [D.26]
Type:
Other
Published on:
01/01/2009
D6-04 - European Helplines Network 4 (EN) lead by
European Organisation for Rare Diseases
- [D.27]
Type:
Other
Published on:
01/01/2009
D6-05 - European Helplines Network 5 (EN) lead by
European Organisation for Rare Diseases
- [D.28]
Type:
Other
Published on:
01/01/2009
D6-06 - European Helplines Network 6 (EN) lead by
European Organisation for Rare Diseases
- [D.29]
Type:
Other
Published on:
01/01/2009
D6-07 - European Helplines Network 7 (EN) lead by
European Organisation for Rare Diseases
- [D.30]
Type:
Other
Published on:
01/01/2009
D6-08 - European Helplines Network 8 (EN) lead by
European Organisation for Rare Diseases
- [D.31]
Type:
Other
Published on:
01/01/2009
D6-09 - European Helplines Network 9 (EN) lead by
European Organisation for Rare Diseases
- [D.32]
Type:
Other
Published on:
01/01/2009
Final report lead by
European Organisation for Rare Diseases
- [D.33]
Type:
Other
Published on:
01/01/2009
Details
Start date:
01/01/2009
End date:
01/01/2010
Duration:
12 month(s)
Current status:
Finalised
Programme title:
Second Programme of Community action in the Field of Health 2008-2013
Call:
(2HP-PRG-THEM) Promote Health (Hp-2008)
Topic:
(2HP.HD-20082-26) Action on rare diseases
EC Contribution:
€ 473 075,00
Keywords:
Accessibility
,
Health system
,
Patients rights
,
Rare diseases and disorders
Portfolio:
Rare diseases
Website