Download: PDF RTF XML Booklet: Review (0) Retrieve Add item
European Best Practice Guidelines for QA, Provision and Use of Genome-based Information and Technologies [PHGEN II] [20081302] - Project
General objectives

PHGEN II produces the first edition of "European Best Practice Guidelines for Quality Assurance, Provision and Use of Genome-based Information and Technologies". The guidelines assist Member States, Applicant and EFTA-EEA Countries with evidence-based guidance on timely and responsible integration of genome-based information and technologies into healthcare systems for the benefit of population health.

Strategic relevance and contribution to the public health programme

Development of a common understanding of Public Health Genomics between all stakeholders in Europe and identification of the need for European coherent guidelines in that field.

Methods and means

PHGEN II will compile existing guidelines/best practice recommendations and review the available evidence including emerging evidence from relevant European research and health action networks. A "checklist/reference frame" for the guidelines will be developed. PHGEN II will use the checklist to identify common denominators in the existing evidence and to detect gaps. Then, PHGEN II will develop and test the European Best Practice Guidelines and strives for the endorsement through the panel by mechanism described in the bylaws.

Expected outcomes period

PHGEN II produces the first edition of "European Best Practice Guidelines for Quality Assurance, Provision and Use of Genome-based Information and Technologies". The guidelines assist Member States, Applicant and EFTA-EEA Countries with evidence-based guidance on timely and responsible integration of genome-based information and technologies into healthcare systems for the benefit of population health.

Details
Start date: 01/06/2009
End date: 01/12/2012
Duration: 42 month(s)
Current status: Finalised
Programme title: Second Programme of Community action in the Field of Health 2008-2013
EC Contribution: € 1 301 693,00