Latest projects

3rd Health Programme (2014-2020)
Supporting Member States voluntary cooperation in the area of pricing through the Eu-ripid Collaboration [EURIPID]
The EURIPID Collaboration operating since 2010 is a voluntary collaboration of the European authorities in charge of pricing and reimbursement of pharmaceuticals for the mutual sharing of information ...
The EURIPID Collaboration operating since 2010 is a voluntary collaboration of the European authorities in charge of pricing and reimbursement of pharmaceuticals for the mutual sharing of information related to the pricing of medicinal products via an online accessible up-to-date, and comprehensive database including the vast majority of EU Member States. The current proposal aims at supporting the voluntary cooperation between the national authorities by continuing the information provision on the existence of managed entry agreements, prices and sales volumes of reimbursable medicinal products, by enhancing the services to the users and also to general public and by strengthening the cooperation in the field of pricing of medicinal products between the national authorities and the stakeholders of the pharmaceutical sector, with a special focus on the European Medicines Agency (EMA), the European Medicines Verification Organisation and Eurostat.
The proposal foresees the creation of enhanced public interfaces of the EURIPID website and the establishment of regular newsletters so that the Collaboration will share more information about its activity with the general public; the spreading of the recommendations of the technical Guidance Document which are going to be prepared jointly by the national competent authorities and the stakeholders; the extension of the data content of the database to non-reimbursed but regulated priced products.
The terms of a formalised cooperation with the stakeholders will be defined so that the regular platform for information exchange will be established. The platform will discuss the options for the extension of the access to the EURIPID website, the options for sharing real price information between the Member States and the possibilities of cooperation between the EURIPID Collaboration and other ongoing projects like Article 57 database of EMA and the European Medicines Verification System.

Start date: 01/02/2019 - End date: 31/01/2022

Call: Call for Proposals for Projects 2018
Topic: 3.4 Provide expertise and share good practices to assist Member States undertaking health system reforms by setting up a mechanism for pooling expertise at Union level, to provide s...
Topic: 3.4 Provide expertise and share good practices to assist Member States undertaking health system reforms by setting up a mechanism for pooling expertise at Union level, to provide sound and evidence-based advice on effective and efficient investment and innovation in public health and health systems. Facilitate the uptake of the results streaming from research projects supported under the Seventh Framework Programme of the European Community for research, technological development and demonstration activities (2007-2013) and, in the long term, the activities which will be undertaken in the Framework Programme for Research and Innovation (Horizon 2020).
3rd Health Programme (2014-2020)
EURORDIS RARE DISEASES EUROPE SGA 2019 [EURORDIS SGA FY2019]
EURORDIS Rare Diseases Europe is a non-governmental patient-driven alliance of patient organisations and individuals active in the field of rare diseases, dedicated to improving the quality of life of...
EURORDIS Rare Diseases Europe is a non-governmental patient-driven alliance of patient organisations and individuals active in the field of rare diseases, dedicated to improving the quality of life of all people living with rare diseases in Europe.
EURORDIS was founded in 1997 by four patient groups from different therapeutic fields: the Association Française contre les Myopathies (AFM), Vaincre la Mucoviscidose, Ligue nationale contre le Cancer (LNCC), and AIDES Fédération.
Today it is supported by its members and by the Association Française contre les Myopathies, AFM- Téléthon, the European Commission, corporate foundations and the health industry.

EURORDIS advocates for people living with rare diseases, supports patient engagement at EMA, as well as in HTA and ERN activities and provides services to patients such as training, information and networking on all aspects of their condition. This is done through several activities such as the EURORDIS Open Academy, the EURORDIS Membership Meeting, Rare Disease Day and the European Conference for Rare Diseases which are all EURORDIS initiatives as well as providing tailored communication through the eurordis.org website and EURORDIS regular newsletters, webinars and social media.

The EURORDIS Specific Grant Agreement 2019 continues the work of SGA 2018 within the overarching Framework Partnership Agreement 2018-2021. EURORDIS has noted that the Call for SGA 2019 has an envelope of 5M€ vs 5.8M€ in 2018. As there is uncertainty as to the approach that should be taken with respect to this application, we have decided to keep a consistency with the FPA 2018-2021 and as such to include the activities and the budget as these were presented in the FPA. We hope that this approach will give CHAFEA the maximum flexibility to take decisions on the allocation of the OG envelope amongst the FPA 2018-2021 participants.
Start date: 01/01/2019 - End date: 31/12/2019

Call: Financial contribution to the functioning of non-governmental bodies (Operating grants)
Topic: 3rd Health Programme (2014-2020) - Priorities
3rd Health Programme (2014-2020)
THALassaemia In Action 2019 [THALIA2019]
Thalassaemia, a previously fatal childhood genetic disease, can today be effectively prevented and appropriately treated, as a result of medical and scientific advances in the last three decades. Howe...
Thalassaemia, a previously fatal childhood genetic disease, can today be effectively prevented and appropriately treated, as a result of medical and scientific advances in the last three decades. However, thalassaemia’s prioritisation on national health agendas and the development of national plans for its effective control in the EU has been hampered by the many challenges involved, mainly related to its rarity and migration.

THALassaemia In Action 2019 (THALIA2019) focuses on Europe, targeting patients with thalassaemia and other haemoglobinopathies, healthcare professionals and policymakers and aims to attain four general objectives, based on TIF’s main pillars of activities:

1. Continue and strengthen the education of patients/parents and healthcare professionals, as well as the patients’ capacity, competency and networking within and across countries and regions of Europe. This is to be achieved via the development of e-learning tools and the launching of capacity building courses and training seminars.

2. Raise awareness on thalassaemia and the importance of optimal care amongst the public at large, as well as among THALIA target groups at national and European level. This will be attained using an array of online tools, activities and publications.

3. Prioritise haemoglobin disorders and their control (prevention and management) at European level. This will be accomplished by establishing and training national patients’ associations in EU priority countries, creating an EU Electronic Health Record and entering into policy dialogue with policymakers at national and European level.

4. Support research programmes and studies focused on the clinical management of Thalassaemia. This is to be achieved via the publication of guidelines on the clinical management of Thalassaemia, participating in scientific conferences and providing fellowships to medical specialists.

Knowledge is our power.
Start date: 01/01/2019 - End date: 31/12/2019

Call: Financial contribution to the functioning of non-governmental bodies (Operating grants)
Topic: 3rd Health Programme (2014-2020) - Priorities
3rd Health Programme (2014-2020)
European Cancer Leagues Collaborating for Impact in Cancer Control (2019) [ECL SGA 2019]
The Association of European Cancer Leagues (ECL) provides a unique platform as the only organisation with the mission of uniting, at the European level, national and regional cancer leagues to achieve...
The Association of European Cancer Leagues (ECL) provides a unique platform as the only organisation with the mission of uniting, at the European level, national and regional cancer leagues to achieve a cancer-free Europe. In coherence with the FPA 2018-2021, this SGA focuses on the core activities to be implemented in 2019 in respect of the following strategic objectives:

1) Informing policy to ensure cancer control remains high on the political agenda;
2) Promoting the European Code Against Cancer (ECAC) as the essential tool for cancer prevention;
3) Supporting leagues in the implementation of the Council Recommendation on Cancer Screening;
4) Uniting leagues to advocate for equal access to treatment, support, and rehabilitation for cancer patients;
5) Advocating for the European Guide for quality improvement in cancer control to be mainstreamed in national
cancer plans.

These objectives will be achieved by several actions, including:
- performing a survey of national contact points to update the triennial tobacco control scale;
- securing the re-establishment of the MEPs against Cancer (MAC) group in the next mandate of the European Parliament;
- publishing a policy framework of supportive actions to implement the European Code against Cancer;
- developing a web portal on cancer screening to be hosted on the ECL website (www.cancer.eu);
- drafting and disseminating new guidelines on healthcare professionals communication with patients, and effective use of volunteers by cancer leagues;
- collecting best practice on the implementation of the CanCon guide at the national level.

This proposal has relevance to the annual work programme through its focus on health determinants and health promotion, boosting cancer control, and equitable access to healthcare.
Start date: 01/01/2019 - End date: 31/12/2019

Call: Financial contribution to the functioning of non-governmental bodies (Operating grants)
Topic: 3rd Health Programme (2014-2020) - Priorities
3rd Health Programme (2014-2020)
Schools for Health in Europe Network Foundation (SHE) [SHE Operating Grant]
The overall aim of SHE is to improve the health of children and young people in Europe, including reducing health inequalities, through a setting focus on schools. SHE supports its members to further ...
The overall aim of SHE is to improve the health of children and young people in Europe, including reducing health inequalities, through a setting focus on schools. SHE supports its members to further develop and sustain school health promotion in each EU Member State by providing a European platform for school health promotion. SHE contributes to national and regional development and implementation of school health promotion, as well as the development of new knowledge and evidence.
For the period 2018-2021 three specific objectives are formulated based on the mission and purpose of SHE: 1) By the end of 2021 the functioning of national and regional health promoting school networks and the implementation of health promoting schools has been supported by sharing good practices, expertise and skills and reinforcing the position of SHE national and regional coordinators; 2) By the end of 2021 the professional competence development of the SHE members and other stakeholders has been supported by the delivery of the SHE support programme; 3) By the end of 2021 the visibility and access to evidence based information on school health promotion has increased by the delivery of SHE publications and presentations.
Methods to achieve these objectives are: ameetings with SHE members and other stakeholders; capacity building workshops; SHE website; SHE helpdesk; share information through newsletters and social media and encourage regional and cross-border cooperation. Also, support school twinning; develop and implement teacher training material on school health inequality, renew the SHE online school manual; organising the SHE academy, support publications and do consultancy visits. Furthermore, develop and publish SHE promoting material; factsheets; online glossary; representing SHE at international conferences; developing European standards and indicators for health promoting schools and monitor the implementation on school health promotion in Europe.


Start date: 01/01/2019 - End date: 31/12/2019
Call: Financial contribution to the functioning of non-governmental bodies (Operating grants)
Topic: 3rd Health Programme (2014-2020) - Priorities